It has to go through a specialty pharmacy. Go to the Arikayce website. They have the forms there and phone numbers to contact support to help you through the process of getting this prescribed.
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How did they diagnose you? Sputum tests? Bronchoscopy? How were the "cultures" taken? You have several issues that could make your lungs vulnerable I would think. I didn't have anything but a thyroid issue when I was diagnosed with MAC. Within 2 months it created a hole/cavity in my upper left lobe of my lung that was 10 cm big.
@tinaesims – I use distilled water and literally boil it for my Amikacin equipment. It's what the nurse and others in the program instruct to do. If on vacation or somewhere inconvenient, I think some use hot plates
@brigby – Only if I could fit in gym time in the morning….oh and the energy LOL! I usually go to the gym after work around 5:30 or 6:00 and weekend afternoons. This really does require everything you said. I remember my doctor saying that the nebulizing is just "a pain in the butt" and I thought "how big of a deal can it be"? LOL! One I got into routine it wasn't so bad. Adding the Amikacin treatments to my day and all that has to be done with sterilization etc with it is another story….again – once in routine not so bad.
Sometimes the Albuterol makes me shaky so I'll take a low dose of Xanax to keep me calm. But then I'm pretty relaxed, still groggy from nights sleep and can take an hour or so nap before I have to get up. LOL! Also, I have to do these every 12 hours so if I do my next one at 4:00 in the afternoon, I can do my Amikacin treatment a few hours later at a convenient time before bed. Doing the Albuterol and Saline solution a couple/few hours before Amikacin allows everything to be cleared out of my lungs and opened up to make it easier for the Amikacin to get in there deeper.