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Posts (8)

Nov 4, 2018 · I was diagnosed with a stromal (gist) tumor 3 1/2 years ago in Cancer

Hi Teresa,
Maria posted in 2012, Says she was diagnosed 3 and 1/2 years ago which means she was diagnosed sometime in 2009, 9 years ago. I would love to know about her journey for 9 years. I pray she is out there and will respond…

Nov 3, 2018 · GIST Tumor in Cancer

I definitely will keep in touch. Thank-you for your input! This is really challenging me but I will survive through it….:-)

Nov 3, 2018 · GIST Tumor in Cancer

I feel fine on a daily basis. I have not experienced any adverse physical reaction other than the 2 episodes I mentioned. After the blood transfusions, I regained my energy and strength and live each day as I would normally. I am doing a minimal working job. No pain, no weight lost, nothing!!!! The tumor is located in the upper part of my stomach, right where the esophagus meet the stomach. I don't know how to go about getting a second opinion from places like a university medical center or places like the Mayo clinic. I am on a Medicare Advantage Plan, no other insurance and my funds are limited. I am allowed to go outside of my chosen medical group but I am at a lost on the protocol of doing this. I am looking to hear from others how this is done. I live in California…It is good to be sharing this and getting feedback from others. Thank-you so much…

Nov 3, 2018 · I was diagnosed with a stromal (gist) tumor 3 1/2 years ago in Cancer

Hi Maria…I've just recently been diagnosed with a GIST tumor. Would love to hear about your journey. Can we communicate??

Nov 2, 2018 · GIST Tumor in Cancer

Thank-you!! I am looking for insight on this condition….

Nov 2, 2018 · GIST Tumor in Cancer

I am a healthy specimen. Other than giving birth to 5 children, I had no reason to be admitted to any hospital.

2 weeks prior to Sept 6, 2018, I had an episode where I had a horrible black, tarry stool. I felt faint and weak but I ignored it, not really knowing the severity of what just happened to me.

On Sept 6, I had another episode, no bowel movement, but feeling faint and weak. I went to my PCP who did a blood work sample, where my hemoglobin was at 6 and my blood pressure was 90/60.

She immediately stated that I needed to be in an emergency room. I went and was admitted to the hospital, where I received 2 units of blood, a CT scan and an endoscopy. At first what I was hearing was I had a “bleeding ulcer” which was biopsied and results were benign for cancer.

When I was dismissed on Sept 10, 2018 from the hospital the term now was that I have a “GIST tumor”. Surgery is recommended. I have talked to a surgeon who have advised me that a second biopsy is necessary and depending on that biopsy, would determine if my surgery will be minor or major!! I could go to sleep with my stomach intact and wake up with my stomach removed. I am right now seeking a Gastroenterologist for a second opinion. Needless to say, this journey is challenging being a 75 year old woman on a Medicare advantage plan!
Sorry, I know this is wordy but I want input on this issue!!

Nov 2, 2018 · GIST Tumor in Cancer

Hi there! Anyone been diagnosed with GIST Tumor in the stomach! Would love to hear from you!!

Oct 25, 2018 · Constipation and ulcer in Digestive Health

I agree with jane. See your doctor. Have them check your hemoglobin level. Black stools are an indication that you are losing blood which may explain the weakness you are feeling in your legs