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Health Interests
Autoimmune diseases, Lung and airway disorders

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Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

@rayhastings Have you experienced any side effects from the esbriet? Is this the only med you are or have taken for this condition? Thank you.

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

@robinson Are you able to maintain your weight? My husband has lost 25 pounds & it’s a struggle because he has no appetite.

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

@robinson That’s good to know. How long have you been on the med?

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

@robinson when referred to as IPF doesn’t that mean you don’t know what caused the fibrosis? We do know what caused my husband’s. It was working in carcinogenic environment most of his life. He’s 76 yrs old. I would guess the symptoms & treatment would be the same either way. Are you experiencing no side effects from the olev? I’m not familiar with stem cell therapy. I’ll research it. Thanks for your info!! I wish you the best!!

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

@sassyboots thanks for your reply! This will help us make our decision. Hope it continues to go well for you!

Nov 2, 2018 · Pulmonary Fibrosis* in Lung Health

@windwalker Thank you! I am a constant googler myself & have learned so much about pf since my husbands diagnosis. I knew nothing about it before. I would really like to hear from some who have been treated for pf by Mayo. The side effects of the new meds scare us.

Nov 2, 2018 · Pulmonary Fibrosis* in Lung Health

Thank you for your reply! My husband was diagnosed with chronic inflammation and fibrosis at Mercy Hospital in Ft. Smith, AR. They sent his biopsy to Mayo for second opinion & it came back exactly the same. I read on Mayo website that the only meds they mentioned have some BAD possible side effects like liver damage. So it’s scary! His condition is he is not oxygen dependent. Just doesn’t have energy to move around much & no appetite!! We’ve addressed the chronic inflammation by giving up the stressful lifestyle/employment, staying out of the carcinogenic environment that he has spent most of his life in, & changing diet to mostly non-inflammatory foods, & taking anti-inflammatory supplements. It’s only been 2 weeks since his Dr received the 2nd opinion diagnosis from Mayo.

Nov 2, 2018 · Pulmonary Fibrosis* in Lung Health

My husband has been diagnosed with pulmonary fibrosis. I’m looking for someone who has been treated for that at Mayo.