About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (3)

5 days ago · IDIOPATHIC PROGRESSIVE POLYNEUROPATHY in Neuropathy

TO ALL WHO RESPONDED TO "IDIOPATHIC PROGRESSIVE NEUROPATHY
Thank for the inputs and helpful hints.
Many of you have classic pain and numbness with your problem. ME, I have very very little pain BUT my problem is weakness esp. in legs. I do have some foot numbness but so far, i can deal with that. IF i walk up 20 steps, I am so tired at the top, I have to rest and I workout 5 to 6 days a week. It is progressing for sure but I try exercises to help

Wed, Feb 12 12:43pm · IDIOPATHIC PROGRESSIVE POLYNEUROPATHY in Neuropathy

I was diagnosed about 2+ years ago. I had local testing, then a visit to Johns Hopkins. They cannot find the root cause and I continue to go downhill. Has anyone had a similar problem or does anyone know where you go after no one can diagnose and find the root cause?

Thanks
Larry Shepherd

Fri, Jan 24 11:33am · Living with Neuropathy - Welcome to the group in Neuropathy

Hello. This is my initial post and my main question is: Are there patients on this platform who have idiopathic progressive peripheral neuropathy? I have had testing and do not know where to go next! Thanks in advance for any helpful information
Larry