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Fri, Feb 14 9:32am · Idiopathic Progressive Polyneuropathy: How to find a specialist? in Neuropathy

TO ALL WHO RESPONDED TO "IDIOPATHIC PROGRESSIVE NEUROPATHY
Thank for the inputs and helpful hints.
Many of you have classic pain and numbness with your problem. ME, I have very very little pain BUT my problem is weakness esp. in legs. I do have some foot numbness but so far, i can deal with that. IF i walk up 20 steps, I am so tired at the top, I have to rest and I workout 5 to 6 days a week. It is progressing for sure but I try exercises to help

Wed, Feb 12 12:43pm · Idiopathic Progressive Polyneuropathy: How to find a specialist? in Neuropathy

I was diagnosed about 2+ years ago. I had local testing, then a visit to Johns Hopkins. They cannot find the root cause and I continue to go downhill. Has anyone had a similar problem or does anyone know where you go after no one can diagnose and find the root cause?

Fri, Jan 24 11:33am · Living with Neuropathy - Welcome to the group in Neuropathy

Hello. This is my initial post and my main question is: Are there patients on this platform who have idiopathic progressive peripheral neuropathy? I have had testing and do not know where to go next! Thanks in advance for any helpful information
Larry