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Oct 23, 2018 · Collagenous Gastritis in Digestive Health

Thank you it is good to hear there are others. To our knowledge H is the only child in the uk with it. She has had it for 5 years starting with severe symptoms of anaemia and progressing to acute sudden bout of vomiting violently with severe blood loss every 9-12 months. Luckily she is pretty stable now but it would be lovely to hear that hopefully she will grow out it maybe fingers crossed. So little is known about it here. A

Oct 23, 2018 · Collagenous Gastritis in Digestive Health

omg this is brilliant thank you. How wonderful to actually hear from someone with some exposure to it. 🙂

Oct 23, 2018 · Collagenous Gastritis in Digestive Health

She takes omeprazole daily and has regular blood tests and iron infusions to deal with the side effects of the omeprazole. This does seem to have stabilized her. They talked about topical steroid taken orally but didn't feel it was needed. 🙂

Oct 23, 2018 · Collagenous Gastritis in Digestive Health

yes please, hopefully i will be able to talk to others in the same situation. What makes her case even more scary is she experiences no pain whatsoever and so we have no warning. Diagnosed through biopsies. Thank you Teresa.

Oct 23, 2018 · Collagenous Gastritis in Digestive Health

Hi i am in the UK and my daughter was diagnosed with this when she was 13. We don't know of any other uk paediatric cases and even our doctors haven't met any adults even with it (we are lucky enough to attend one of the best in the uk). Do any of you have children with this please who would like to share information? Thank you Alison.