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Mon, Apr 1 6:54pm · To do or not to do: Bilateral mastectomy and implants in Breast Cancer

@sclark3 I had a BMX in June 2018 after 8 months of chemo. I knew I wanted immediate reconstruction. My plastic surgeon used a permanent expander that becomes the implant. This means the is no 2nd surgery needed to switch out the expanders for the implant. The brand name is Becker. I appreciate where you are coming from dealing with pain. Personally I was pleasantly surprised by how little pain there was. The expansion felt like a good workout at the gym, a bit sore but no pain. I also agree with @tessfair1 that you can always change your mind later on. She offers good advice to seek out a second opinion from a plastic surgeon. Good luck.

Fri, Feb 22 2:50pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

I completely agree with you that the medical staff are trying to use the least intervention as possible. At 37 I was diagnosed with her+ and a month later after the MRI and bone scan I was told I was stage 4. My oncological surgeon only wanted to do a lumpectomy after ACT. It was mental anguish to wait 8 months for surgery. I knew I could not deal with the constant monitoring and begged her for a DMX. It was a fierce negotiation but she agree to only do one breast and leave the other. Luckily, my plastic surgeon agreed and talked the oncological surgeon into doing both. I do not miss my breast and am very happy with my decision.

Sat, Feb 2 10:55am · Bilateral breast cancer w sentinel node removal: Lymphedema prevention in Breast Cancer

What a terrible comment for your doctor to say you are taking the issue to far. I only had 4 lymph nodes taken from one side and was told like everyone else not to have blood or blood pressure taken from that side. I was also told the fewer the lymph nodes removed the lower your chances of lymphphedema. I agree you with you the test centres should be more accomidating.

Thu, Jan 17 10:54am · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer

As crazy as this sounds, I did not think of taking anything. I live alone and was diagnosed in my 30’s. I was super healthy and fit and have never been sick. I did not even have any painkiller in my home. I far as I know the ports are always inserted on the opposite of the cancer.

Thu, Jan 17 10:45am · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer

I was also awake when the port was inserted. The procedure went fine. I was in recovery for about an hour and then was sent home. About 6 hours later the freezing wore off very quickly and then I was in excruciating pain. I was not advised to wear an open button shirt and was in so much pain I was not able to change the T-shirt I was wearing until the morning of that first round of chemo. I could barely bend forward to brush my teeth. I mentioned this to the chemo nurse I she told me I should have been taking Tylenol as soon as I got out of the OR. Hopefully I am an exception cause as I said, the mastectomies and reconstruction was no where near as painful as the port. It took over a month for the incision to heal but I think that was cause my white blood cells plummeted after the AC. Once I got on neulasta I headed up within days.

Thu, Jan 17 10:31am · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer

I had 4 rounds of AC followed by 16 round of Taxol a year ago. While on Herceptin I had a double mastectomy with immediate reconstruction. I am still on Pertuzumab and Trastuzumab. I found the Taxol and the AC to be the worst chemo to tolerate. I honestly regret having the AC and Taxol and wish I just had the mastectomies and target treatment. Too late now. I had my port inserted 48 hours prior to my first round of chemo. That surgery was more painful than the mastectomies. My intention is not to scare you but rather be up front and honest. I wish knew what I was in for and was in a position to make a better decision. My suggestion is take an extra day or two to think about this. You are right the chemo is horrible.