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Nov 14, 2018 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

How long have you had it now? They found mine in my early 40s and I am 55 now

Oct 26, 2018 · How do you not let a brain tumor take over your life? in Brain Tumor

Thank you for your reply, diagnosed in 04 grew had surgery in 2015, radiation i 2017. Team thought at first it was treatment related now they are thinking it's progressing, fightened beyond belief. On own for most part, divorced husband he became addicted to opiods lost house living with friends from church. Mostly afraid there will come a time I won't be able to work

Oct 26, 2018 · How do you not let a brain tumor take over your life? in Brain Tumor

How do you not let this take over life. Waiting to see Nero oncologist at end of November to discuss next steps and all I want to do is cry

Oct 9, 2018 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

I don't want to sound like I am whining I am blessed

Oct 9, 2018 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

It is Temozolmide I think. The biopsy says one thing along with the spectroscopy but the tumor is still growing they think. It's being scared. I am no more special then anyone else. They found it in 2004 and watchu for so long. I am in uncharted territory for myself. Not to be long winded, I left my husband in February as he was addicted to opiods lost our house and a bunch of other things happened. Just really scared of being on my own I am so blessed. I have a wonderful church family and living situation with one of the families.

Oct 8, 2018 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

Yes in 2004, I am now 55 scared and sad went thru surgery in 2015 and radiation and it still got a bit bigger at MRI last week, they are talking chemo pills anyone gone thru this thanks Lorena not sure how I found this site