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Posts (6)

Dec 17, 2018 · hypermobility and si joint dysfuntion, maybe something else? in Bones, Joints & Muscles

i felt the pop almost a week ago and am still in a large amount of pain.

Dec 16, 2018 · undiagnosed still looking for answers, please help? in Autoimmune Diseases

I have multiple specialists and doctors for all of these symptoms. I am just looking for guidance on where to go next. thanks.

Dec 16, 2018 · undiagnosed still looking for answers, please help? in Autoimmune Diseases

Hello everyone! I'm 18 years old and really need to get my medical conditions under control and figured out, so I was hoping some of you had some ideas.
I was born at full term, seemed to be healthy, and went home right away. Apparently I was not a great baby sleeping for 10 minutes at a time and would scream otherwise. At 3 months I had to be resuscitated and was on an apnea monitor for 4 months. at 2 years I was diagnosed with an auditory speech delay which eventually got me diagnosed with Autism spectrum disorder. At 3 I was diagnosed with juvenile oligoarticular arthritis only affecting the right and then eventually both knees. Since my last flare almost 8 years ago, I have had chronic pain in my joints. even ones not affected by any inflammation. My rheumatologist says that I am hypermobile but I did not score high enough on the beighton scale to be diagnosed with a hypermobility syndrome or Hypermobile ehlers danlos syndrome, because I am not hypermobile in my fingers which counts for 4 of the 9 points. I have extremely soft velvet like skin but no atrophic scarring and I tend to Subluxate my si joints and hips and shoulders. I was recently diagnosed with a bicuspid aortic valve which is a congenital heart defect. and I have multiple kidney stones. I get periodic episodes of severe joint pain and weakness where I need to use crutches to get around and walk. All of this is of course taking a toll on my mental health leaving me with depression and anxiety. and I have been tested for everything it seems like. I forgot to mention that my arthritis has moved to my eyes with uveitis and scleritis. Someone please help if you have any ideas. I can tell you that it is not lupus and not lyme disease as those have been ruled out multiple times. thanks

Dec 16, 2018 · hypermobility and si joint dysfuntion, maybe something else? in Bones, Joints & Muscles

Hi everyone. I have hypermobility and I have subluxated my si joints many times. but this last time I felt a giant pop when it happened, and there has been severe pain and very slight bruising and a little swelling. I am afraid that I may have possibly got a stress fracture due to repetitive exercise and this injury has just made the pain worse. I also have pain in my buttock and groin and am extremely tender to the touch since the loud pop in my low back. If anybody has any ideas please let me know. And I am going to a physical therapist this week to try and help. Thanks

Oct 28, 2018 · Incontinence at 18 in Kidney & Bladder

Hello everyone. I know incontinence is a not so fun subject to talk about but I have a few concerns for myself when it comes to my bladder control. I am 18 years old and for the past 9 years I have had continence problems. Most of the doctors I brought it up to have said it was due to constipation, but I have done clean out after clean out and am still having bladder leakage. I also have a history of kidney stones and hematuria but there was never a definitive cause for it. My incontinence is to the point where my clothes will smell of urine and having to search for the restrooms in whatever location I may be in. If anyone has any advice or insight on what I can do please let me know. Thank you

Oct 8, 2018 · Undiagnosed, any ideas? in Autoimmune Diseases

Hi everyone! I was diagnosed with juvenile oligoarticular arthritis when I was 3 but since the age of 13 I’ve been getting very light headed and dizzy, along with night sweats, and blood in urine. I’ve also had posterior scleritis and uveitis and severe episodic joint pain without any swelling. If anyone has any suggestions of what this could possibly be, please let me know! I’m 18 now and the “flare ups” are getting more and more frequent. Thank you