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Bone, joint, and muscle disorders, Chronic pain, Digestive disorders, Ear, nose and throat disorders, Mental health disorders, Women's health issues, Other

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Sep 29, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Nothing has worked for my chronic constipation. I only produce "pellets" with stool softeners. When I was on pain meds prescribed Linzess and Movantik specifically for opioid induced constipation. Did not work. A nurse at pain clinic told me to take Senna, a stimulant laxative. I take every Sunday. Hate living like this..this is no way to live. Fiber only makes things worse for me, have tried it all..including flaxseed, Probiotics with BB-12, VSL 3. Nothing. Can you please tell me what probiotic you take? Please don't tell me to "take Miralax" there is an black box warning on it on FDA website..It will soon be taken off market I think. It makes me cramp too much..

Sep 29, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi, I can definitely relate. I too suffer from pain. I think and look at a picture of me on front stairs..about a year and a half ago. I looked nice, photo was on Facebook..I was on pain meds for severe degenerative back disease from fall off horse at horse show at the age of 21. I'm now 56..was on pain meds for a very long time..too long along with trigger point injections, steroid shots, but at that time, the shots and muscle relaxers worked great. I had the horrible constipation that pain meds are notorious for causing, but at that time I was younger, had a social life, outgoing..then I had a stupid idea to go cold turkey off pain meds. Never should have done that. My digestive system has been ruined, now I am coping with even more debilitating constipation..I live on stool softeners and a stimulant laxative every Sunday just so I can flush. I have lost over 100 pounds, and I don't even look like the same person I no longer have any quality of life due to IBS, cramping with even the smallest meal..weekly laxative use..my life revolves around my bowels and just feeling lousy. Nothing seems to work..fiber, Probiotics, etc only makes things worse. All tests seem to be okay. I get "dismissed" by uncaring gastroenterologists, constant trips to ER for impaction..when I to in, severly constipated and crying, at my wits end, nurses and ER doctors roll their eyes at me
. I have no family left, no significant other..my friends all have given up on me, as I had to always cancel plans to to IBS. Since my constipation is chronic and severe even on stool softeners, I have to "strain" and now from that, my right shoulder is so painful. I have no idea what kind of Doctor to see for my right shoulder pain. I too think about my time in Maui back in 1995. How happy I was, I was working at a job I enjoyed, Maui was so beautiful and romantic. Living in Seattle at that time, had met a man and was falling for him. Feeling so happy and in love, euphoric in Maui. Now I sit here, alone, no friends. Missing my cats, and knowing tomorrow I will be on the toilet all day, in pain from a harsh stimulant laxative. This has been my life now going on six years. The good news, I am no longer loosing weight..have gained 4 lbs, so may not have to be put on a feeding tube after all..yet my life that was, is no more.

Sep 29, 2018 · Let's Chat: Ken Burns film, "The Mayo Clinic, Faith - Hope - Science" in Just Want to Talk

I'm so sorry you are going through this..sending you hugs..x

Sep 28, 2018 · Let's Chat: Ken Burns film, "The Mayo Clinic, Faith - Hope - Science" in Just Want to Talk

Thank you so much for the very helpful information..

Sep 28, 2018 · Let's Chat: Ken Burns film, "The Mayo Clinic, Faith - Hope - Science" in Just Want to Talk

I just clicked on the link and "followed" but didn't see anywhere where I could post or introduce myself. I'm not really sure what it is all about. Is it a newsfees for Moderators just to post..a little unclear about this segment. Thanks. ☺

Sep 28, 2018 · Splenic Cyst in Blood Cancers & Disorders

Yes, I have scheduled injections monthly at the Hematologist office. I will be sure to let you know. I don't want my case manager to take me just to get a shot (due to lack of transportation or it being expensive – shuttle, she takes me to all my Doctor's appointments) but I decided to get brave yesterday, and take another one. I made sure to have something to eat before, and it did not bother my stomach, although I did experience a little nausea. I don't know if it was that or not. I'm feeling brave again this morning and will take another one. If they continue to not bother my stomach, will cancel the shots..as it is too expensive and a bit inconvenient to wait and wait in a waiting room just for a shot. I'll be sure to let you know if I end up getting them. ☺

Sep 28, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@doxyjune @lioness Be careful with Miralax. It's precribed like candy. I don't know why Doctors do this. It's a laxative made from Polythene Glycol (PEG) the same ingredient used in Antifreeze, household cleaning supplies. Not something I would want to put in me. There is a black box warning on FDA website on it..also known as Laxido, Movicol, GoLytely, Clearlax). It may be soon taken off the market. It's a dangerous laxative.

Sep 28, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@grandmar Movantik (specifically for opioid use, Relistor, Linzess and Senna) all very good..☺