Thanks for your help! Are the nerve ganglia always removed?
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She had a follow up something????? I don't think it was a CT but an ultrasound? They were looking at the velocity in the artery. It was improved but still not normal rate. Now I just found a support group and they are suggesting it could be nerve issue now and not vascular. I am going to go to GI next week to see if we get new CT scan. They also suggested a block to test to see whether nerve issue or not?
Hi! My now 16 year old daughter had MALS surgery 15 months ago. Seemed to show some improvement but now she is in pain again. Not sure what to do. So frustrating! We happened to run into the surgeon a while a back and mentioned the pain to her but she did not offer any advice. Do we go back to surgeon or pediatric gastro doctor? I am just not sure that in my local area that either are really experts in this. Even my personal gastro doctor acted as though MALS did not exist. My daughter is getting is getting increasingly frustrated and depressed. Thanks!