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MARK

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IA

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Tue, Apr 2 10:42am · Post CAR T cell -- rash in CAR-T Cell Therapy

This is Mark Wilson, CAR-T patient for about a year. I too apologize for not responding sooner. My rash eventually went away pretty much on its own, and most of the time wasn't itchy. So I was mostly spared; itching is no fun! I'm hoping that as we move away from winter, my dry, flaky skin on my forehead and head will subside.

Nov 20, 2018 · Joint and muscle pain in CAR-T Cell Therapy

Thanks for your message, Brenda. Your son summed it up well. Bless your hearts, 2 weeks is a long time …. But when we were asked if it was worth it, we of course said that it was. May you have many GOOD memories! Mark

Nov 16, 2018 · Joint and muscle pain in CAR-T Cell Therapy

Though I had 10 days in the hospital (2 ICU) and remember little of a week of that time, joint or bone pain wasn't an issue for me ….. Mark

Nov 16, 2018 · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy

That is indeed great news! Thanks for letting us know! Wow, what a road you've been on. Prayers for you continue ….. Mark & Rae

Oct 9, 2018 · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy

I'm Mark in Iowa. I was infused on Apr 17, 2017 and was admitted the next day to the hospital. Neurotoxity put me in ICU for a couple days, hospital total 10 days. I remember very little for a week of the time. I found out I at times was yelling, trying to get out of bed (restrained by up to 6 nurses), couldn't talk, etc. We certainly hope that Graydon doesn't have neuro to the same degree. Will be praying for you both ….