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Wed, Mar 11 2:50pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

Unfortunately, none of the drugs available to those of us with osteoporosis are optimal.

Wed, Mar 11 2:27pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

In addition to bone density, there is bone strength which the Dexa scan does not measure.

Wed, Mar 11 2:25pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

The only drug that actually builds new bone is Forteo, which is a daily injection. There is a new drug just coming on the market, but I don't know anything about it. If you experience side effects with Forteo you can just stop, where Prolia is in your system for at least six months. As I understand the way Prolia works, it stops the natural breakdown of old bone, and suppresses the immune system to do so, allowing you to hold onto old bone that shows up on the dexa as increased bone density. I stopped Prolia after three injections, due both to the many side effects that greatly impacted my quality of life and learning the facts about how it works. There is the risk of rebound fractures when stopping Prolia. I did not go on a relay drug after my last Prolia injection in June of 2018, and have not experienced any fractures. I strongly advise doing your own research before starting any of these drugs. I caved to pressure and fear mongering and started Prolia without doing enough research myself.

Sun, Feb 16 10:41pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

Since stopping Prolia in June of 2018, I had been totally focused on bone health when in July of 2019, to my great shock, I got a stent in my heart for a 99% blockage! The diet I was on for bone health was not necessarily one that was good for my heart, not that there was evidence of the problem suddenly manifesting itself in that year. I had only recently learned that Vitamin K2-MK7 plays a role in directing calcium to the bones helping to avoid deposits elsewhere, so I make sure to take that every day along with the large collection of medications that I must now take. There is an excellent book on K2 and its interaction with calcium written by Kate Rheaume-Bleue. It is true that the body can only absorb so much calcium at a time, so essential to spread it out throughout the day. And given my situation, I am now very careful not to consume too much!

Sun, Feb 16 5:56pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

My third and final shot was in June of 2018. I stopped because of side effects and concerns about how Prolia works. I did not go on a relay drug, which is now suggested, and so far I have not suffered rebound fractures.

Sun, Feb 16 2:28pm · Prolia treatment for osteoporosis in Bones, Joints & Muscles

Doctors are universal in denying Prolia side effects. My gastroenterologist told me that he has a number of patients who are on Prolia and experiencing gastrointestinal issues

Jul 11, 2019 · Prolia treatment for osteoporosis in Bones, Joints & Muscles

I agree. My health and quality of life went into a downward spiral after starting Prolia. My third and final shot was a year ago, and the side effects have started to subside. So in spite of the medical profession denying side effects, I am certain that mine were caused by the drug.

May 17, 2019 · Prolia treatment for osteoporosis in Bones, Joints & Muscles

I agree that no one knows the long-term effects of these drugs. I stopped Prolia after three injections due to a number of side effects, and regret not doing enough research before starting. My internist had been telling me for ten years that I HAD to do something and that the choices were Prolia and Forteo, so I rather blindly agreed to Prolia. I was not told about the potential for rebound fractures when stopping, hence, the need to stay on it forever or switch to another drug. I had extreme fatigue, a persistent cough with mucous, episodes of vertigo, acid reflux, joint pain, itchy skin, and hair loss, with most setting in after the third injection. I saw specialists to rule out other causes for those conditions before deciding to stop Prolia. All of those conditions have improved since stopping. If I were fracturing, I would be more willing to endure side effects, but I am not willing to endure a dramatic loss of quality of life otherwise. And I am now taking my chances that I will be one who suffers rebound fracturing, because I didn't go on another drug. I feel that I am worse off than when I started. I am also one of those who was prescribed Fosamax in the mid-90s when it first came out as a preventative measure, and I didn't even have osteoporosis. It was prescribed to me year after year for nearly 15 years. I just recently learned through my extensive research on these drugs that Fosamax taken for that long can permanently alter the structure of the bones, and is now prescribed for only a very short period of time. All of that said, I know that there are people who take Prolia with no side effects, and that it can be a godsend to someone who is fracturing.