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Sat, Sep 14 11:24pm · Diffuse large B-cell lymphoma (DLBCL): R-CHOP-14 or 21 in Blood Cancers & Disorders

That’s awesome…and good advice…it’s starts with oral hygiene!

Sat, Sep 14 11:14pm · Ketamine for chronic pain in Chronic Pain

No you need to have a doctors prescription and it needs to be compounded for a nose spray or an infusion

Thu, Sep 12 5:42am · Diffuse large B-cell lymphoma (DLBCL): R-CHOP-14 or 21 in Blood Cancers & Disorders

@fwpoole Whatever you decide will be the right choice for you!!! Some food for thought…

Since lymphoma is a circulatory disease, removing the tumorous node and tissue does not necessarily mean that there aren’t cells that could be cancerous nearby. Sometimes they have traveled to another lymph node already but have yet to grow enough to show evidence of disease. Sometimes it travels extra-nodal to other tissue, but again hasn’t grown enough yet.

Personally, having had to battle a particularly aggressive form of this disease, I would recommend a little more treatment in the beginning, versus additional treatment later. Mostly, I would encourage you to have a doctor who you can have open and comfortable communication with about your thoughts and concerns. That will help you trust their recommendations… Which should include some options to the number one suggestion that doc makes. It’s also important to know pros and cons of each option. Again, whatever you decide will be the right choice for you!!!

Wed, Sep 11 5:29am · Diffuse large B-cell lymphoma (DLBCL): R-CHOP-14 or 21 in Blood Cancers & Disorders

@sbergerkinkade I’m so glad your treatment plan seems to have worked for you. In my research and experience, there is really no “standard” treatment plan for DLBCL that I’m aware of. There are many approaches I know about that indicate treatment is very individualized to the person’s specific diagnosis, desires, diseases, doctors’ recommendations and other potentially complicating factors like heart disease, age, and overall health. I invite others to comment if they have had a “standard treatment” and how it worked for them.

Tue, Sep 10 3:29pm · Diffuse large B-cell lymphoma (DLBCL): R-CHOP-14 or 21 in Blood Cancers & Disorders

FWpoole, my first go around, I did 3 RCHOP, ever 3 weeks, followed by 21 radiation treatments. I’ve read in Cure magazine that chewing on ice chips during your chemo can help prevent mouth sores. I did the post treatment with L lysine and glutamate powder and my mouth sores were fairly tolerable. Talk to your doctor about magic mouthwash, too if you develop sores.

Fri, Sep 6 12:39am · RCHOP 3 or 4 cycles with no tumor in Blood Cancers & Disorders

@fwpoole Removal is not necessarily relevant, especially in stage 2. Lymphoma is a circulatory cancer and because of that it can spread, which is why treatment almost always involves chemo. Removal of a node is usually just for biopsy, although there is some research on removal being treatment in very early stage, or less aggressive forms. Removal cal also contribute to spread as you open up possibility of cells leaking. Radiation can help when the tumors are localized, but less so when they are multiple or all over. Being stage 2 sounds like your cancer was already circulating in the area, so radiation can provide some additional benefit even if you had everything removed. I’m sure your doctor can explain why he’s recommended a specific plan.

FYI, I had my initial lymphoma in one node and the base of my tongue (stage 2e). The node was removed for biopsy and I was given chemo plus radiation. My cancer returned in same area. I hope you have success with what your doc recommends!

Tue, Sep 3 2:12pm · Ketamine for chronic pain in Chronic Pain

@JustinMcClanahan Of course my provider talked about some things to expect, but without the typical insert you get with prescriptions, I am interested in personal experiences. Thank you!

Tue, Sep 3 11:51am · bone biopsy pain. in Blood Cancers & Disorders

A full study of your sample usually takes 5-10 business days. Post biopsy, my doctor recommended heat and ice alternating and Tylenol…no nsaids like Advil as they can cause bleeding. I think they gave me some mild pain meds, too. Take it easy for a few days, too.