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Tue, Jul 23 6:17pm · Post Laparoscopic surgery for gallbladder and umbilical hernia in Digestive Health

@Tennisandgolf Follow your instincts ~ if it hurts more, back off. But don't stop moving as that will speed healing and reduce adhesion issues. Just go slowly…maybe just practice putting or hit a few balls at a driving range. Then build up to 9 holes, etc. It has been less than four weeks and even though it's small incisions, it's still a major surgery and you need to give it time to heal. I was 30 when I had mine and I think I took longer than you have! Glad there is no sign of infection!

Tue, Jul 23 11:24am · Post Laparoscopic surgery for gallbladder and umbilical hernia in Digestive Health

@tennisgolf I know that I have two staples remaining from my gallbladder surgery because radiologists comment on it whenever I have a CT scan for my lymphoma. I believe this is a common way to seal off the ducts. I’m a little confused as to where your pain is. Staples would be up in the area of where the gallbladder was, but the laparoscopic sutures would be in your belly button. Personally I have had reactions to some types of stitches that causes an increase in scar tissue. I’ve also had stitches that were supposed to dissolve not dissolve. Both of these for from other surgeries. While the nurse was completely out of line to speak to you like that, she might be right in that it’s just going to take a little more time to heal. However if the doctor noted some redness you do want to make sure you don’t have an infection brewing. I would say that if you have concerns and the nurse is not adequately addressing them, call and make an appointment with the doctor (it seems like there are communication problems anyway so best to get information from doc). At the same time you can tell him you needed to see him because the nurse was very dismissive. In all likelihood it’s just some healing and scar tissue that you’re feeling, but there’s no reason to be sitting and worrying about it if you can simply see the doctor and have it resolved. Sounds like you are otherwise doing quite well, congratulations

Tue, Jul 23 10:49am · Diffuse large B-cell lymphoma (DLBCL): R-CHOP-14 or 21 in Blood Cancers & Disorders

I believe in large part it depends on how quickly you can bounce back from your treatment. I had it sometimes every two weeks and sometimes every three weeks and once or twice at four weeks. This was all due to white cell count. I don’t think going every two versus three weeks has a huge outcome difference otherwise they would change the protocol. They can have a huge impact on you as an individual and quality-of-life however. I think this is an area where you have to develop a level of trust with your doctor. I would express your concerns and desires and listen carefully to his/her response.

Thu, Jul 18 7:18am · Bone marrow transplants for CMML in Caregivers

Is the allogeneic donor related? Either way, it is a long road. Your son will become weaker and sicker with the chemo designed to kill off his existing bone marrow. Once he receives his donor cells, he will begin his climb back, very slowly. The biggest risk during the entire time his infection, followed by a graph versus host disease. He will be monitored extremely closely, with bloodwork every day. I was hospitalized for four weeks for my transplant, but some centers don’t require that. Your son will be very very tired, have a little appetite, and have side effects like mouth sores, swelling from the steroids, and some, but not all of the predicted complications. Once he’s well enough to go home, it takes many months to regain strength and return to normal activities. Sometimes graph versus host disease continues to be a problem and requires follow-up from your local center. Little by little he will regain his strength, but to become 100% can take quite some time. Please let me know if you have any specific questions. Warmest regards and best wishes.

Wed, Jul 17 3:48pm · Bone marrow transplants for CMML in Caregivers

I have had both an Auto and Allo SCT, but not bone marrow. I can tell you about my experiences if you'd like. Which kind is your son getting? He's lucky to have his parents as caregivers.

Fri, Jul 5 7:49am · Loss of long and short term memory in Epilepsy & Seizures

Chris, My son was in college when he developed epilepsy and begin taking medications that made him very tired. He went from a photographic memory to not being able to recall what he just read or remember a lecture he had just attended. He found that reading out loud really helped him retain what he was reading. In fact as part of his support to the college they recorded his books so that he could listen while reading. I don’t know if this will help you and your business dealings, but it may be something to give you a little bit of help and confidence. I agree that our anxiety about forgetting something and make it all the worse. I suffer from short-term memory issues due to extensive chemotherapy I also have chronic pain which has me taking medications that contribute to long and short term memory loss. I find managing my pain and my stress levels and exercising regularly has greatly helped my ability to retain short term details. I hope some of these tricks are helpful for you. Good luck.

Fri, Jul 5 7:37am · Delayed pain after bone marrow biopsy?? in Blood Cancers & Disorders

I’ve had five or six bone marrow biopsies. I usually have discomfort for a few weeks, particularly when sitting on something hard. Ice then heat was the most helpful. Hopefully it will resolve, otherwise mention it to your team.

Mon, Jun 10 6:24pm · Persistent immature grans/left shift on CBCs in Blood Cancers & Disorders

Are you taking steroids or have inflammatory processes? Either could effect the creation of extra immature granulocytes. I assume you’re not pregnant as that would be other cause. If you are concerned about cancer, there are other blood tests they could run, as well as order a PET scan. Do you have other symptoms like pain or fatigue? It may be just because you have hypergammulobulemia…so your body is just producing more granulocytes which means there would be more immature ones…that is what left shift means. The addition of off platelet counts could indicate something is off in your bone marrow though, a bone marrow aspiration may tell you more. Good luck!