Badges (1)


Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (50)

Tue, Jul 2 12:18am · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Your symptoms etc sound like my husband, he was diagnosed at 43 and led an active life on a small dose of atenolol, in 2017 managed a gorilla trekking trip in Rwanda at 8000 ft. Last March had a complete heart block needed a pacemaker/ defibrillator and went down hill over the next few months although was still hiking etc walking 4 miles most days but started having symptoms which took him to Mayo where he had a septal myectomy in October 4. He made an amazing recovery and is back to normal 😊
Best wishes to you for your surgery and recovery. Mayo is the best, also a little biased cos our daughter is a nurse at Mayo in Jacksonville.

Thu, Jun 13 1:14pm · Freaking out a bit in Hypertrophic Cardiomyopathy (HCM)

Fantastic, my husband had his myectomy October last year, he had a complete heart block in March last year and had a paces/ defibrillator implanted which saved his life but over the next few months he was on max meds and still having symptoms as you were.
He was diagnosed with HCM 30 years ago

Thu, Jun 6 12:14pm · Freaking out a bit in Hypertrophic Cardiomyopathy (HCM)

Hi Badmac, I don’t know how old you are but if you are over 65 Medicare pays for surgery no matter where you go. You will be responsible for travel etc

Wed, Jun 5 7:11pm · Myectomy Incision in Hypertrophic Cardiomyopathy (HCM)

I’ve just looked at my husbands scar (surgery last October) it’s visible about 2 inches below the clavicle ( think about the fact that your breast bone will be split )
As soon as you get the go ahead from your surgeon start applying scar cream, it keeps your scar soft and and will be lighter as time goes on.

Wed, Jun 5 6:46pm · Freaking out a bit in Hypertrophic Cardiomyopathy (HCM)

Great answer, my husbands cardiologist here in San Diego actually recommended Rochester.

Wed, Jun 5 3:52pm · can they test for "the HCM Gene" ? in Hypertrophic Cardiomyopathy (HCM)

There is genetic counseling but my husband was told it not absolutely spot on, so he didn’t have it done, there was no other family history saying that our son will be echoed etc every 5 years

Wed, Jun 5 3:06pm · Freaking out a bit in Hypertrophic Cardiomyopathy (HCM)

My husband went to mayo Rochester because if the number of surgeries they perform.

Thu, May 9 10:00pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Septal Myectomy is covered by Medicare, the only thing that Medicare didnt cover was blood sugars which seems odd.