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Nov 27, 2019 · HCM specialist? in Hypertrophic Cardiomyopathy (HCM)

Rondar I am truly sorry that your doctor was not upfront with you. My husband was diagnosed with mitral valve problems at the age of 43, 41 years who) but a year later the diagnosis changed to HCM. October 4 2018 he had septal myectomy at Mayo Rochester after being severely compromised to the point of fainting. He is as normal as normal can be Doing amazingly well still has HCM but it’s no longer obstructive. he takes 50 mgms a day of atenolol We talked to the cardiologist about genetic testing for our son to which the cardiologist recommended having an echo every 5 years so his first echo was normal he will be monitored for the rest of his life.
I hope this helps. Keeping as fit as you can with diet and exercise really helps recovery after surgery if that’s what you need. Best wishes to you and Happy Thanksgiving 🦃

Oct 28, 2019 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

recovery is a very personal thing, so don't judge yourself on how others recover. Take care of yourself

Oct 28, 2019 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Medicare covered the 80% of everything for his septal myectomy last October our supplemental paid the rest. We traveled from San Diego to Rochester .

Oct 28, 2019 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Medicare paid for my husbands cardiac rehab following his septal myectomy October 2018

Sep 1, 2019 · Head rush sensations in Hypertrophic Cardiomyopathy (HCM)

My husband had dizziness on exertion which led to syncope (we live at 4500 ft ) for a few months prior to surgery and on max dose of drugs eg Disopyramide and Atenolol he was not allowed to go out for a walk by himself, surgery made an amazing difference. Wishing you all the very best

Aug 30, 2019 · My husband is having a septal Myectomy in Hypertrophic Cardiomyopathy (HCM)

You are welcome, let us know how things go😊

Aug 30, 2019 · My husband is having a septal Myectomy in Hypertrophic Cardiomyopathy (HCM)

My husband had the surgery last October, he was in otherwise good physical shape, spent 4 days in hospital 2 days in a hotel and then flew home to California. His recovery was great, took about 4 weeks to get back into the swing of things, did some rehab. We are both retired, but as long as your husband can take of himself then I would think a week off after you get home should be plenty as long as the surgery was without complications.

Aug 5, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

My husband had an SM last October at Rochester, 6 months prior to surgery he was on max ( toxic) amounts of meds and they had stopped fully managing his symptoms the side effects were increasing. Apart from all this he was in good physical shape, no diabetes etc. soooo the surgery was amazing he recovered quickly and was back to “normal” still has cardiomyopathy but no obstruction. He/we were beyond impressed with everything about our experience at Mayo.