Badges (2)


Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (70)

Wed, Jun 17 7:25pm · Surgery in MN in 44 days in Hypertrophic Cardiomyopathy (HCM)

My husband had septal myectomy October 4 2018
We traveled from California and stayed at Homewood Suites opposite St Mary’s just. 2 min walk. My husband slept in a regular bed with pillow support following surgery for 2 days at the hotel (no recliners) at home he used a support pillow in bed and was able to get in and out by himself. I’ll clarify all this by saying he was physically fit prior to surgery which was important to his recovery We have a Scandinavian recliner which worked well for him
The hotel serves breakfast and complimentary light dinner during the week.
There’s always someone to answer questions at the hotel
Hope this helps

Mon, Jun 1 10:02pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

You can make your own appointment with Mayo

Sat, May 30 9:39pm · HCM specialist? in Hypertrophic Cardiomyopathy (HCM)

We had always had a really healthy diet veggies fish you know the usual stuff We are not big beef eaters and exercise. The decline in my husbands health was pretty dramatic ( he had been diagnosed at 43 and had surgery40 years later) we had been hiking in Rwanda to see the gorillas in sept 2017 a pacemaker/ defibrillator implanted 3 months later. We live at 4500ft so exercise became really difficult with several episodes of syncope So was not allowed to walk alone. He was truely compromised prior to surgery but he did really well post surgery , out of hospital on the 4th day and flew home to California 2 days later. His recovery was amazing which I think was because he didn’t have co morbid conditions. His diet was the same and he continued a glass of wine every day 😊🍷
I don’t think he realized how compromised he was until after the surgery.
My thoughts are with you, take care this is the BEST support group you will meet anywhere.
Take care

Mon, Mar 9 1:45pm · Heart Disease: Let’s Talk About the Emotional Side in Heart & Blood Health

In 2017 my husband and I went on a gorilla trecking trip, climbing up the side of a volcano in Rwanda. He was diagnosed with HCM at 42 and 30 years later he was still fit etc, we end up at 8000 ft.with no shortness of breath or fatigue sooo go figure. Fast forward to March of 2018 and he had a complete heart block and ended up with an ICD, Strange how things suddenly change because on October 4 2028 had septal myectomy. So take care and keep an eye on any small change.

Mon, Mar 9 10:58am · Heart Disease: Let’s Talk About the Emotional Side in Heart & Blood Health

Thank you, I joined this group in September of 2018 and when replying to another member last week mentioned depression which my husband experienced following open heart surgery. Hopefully a discussion about emotional wellbeing will help others.