Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (4)

Sep 19, 2018 · Post-MALS surgery in Digestive Health

God, you’ll never know how helpful you are. Thank you for taking your time…I have suggested the Facebook support group..and positive steps forward …I’m driving him to Mayo for his appointment in MN. We’re in Chicago..but not til 10/1/ 18 … in the meantime giving him every piece of knowledge I can get my hands on. Amazing what he doesn’t know…never heard about eating small meals and slowly …that seems to be first and foremost with all I have read. The diagnosis fairly resent 3 or so months but still…Fear can cause some to freeze…I feel compelled to help…I talked to him about overmedicating… he said he isn’t…but his Dr just prescribed a medication called Amitriptyline 50 mg….I looked it up…side effects outrageous….he hasn’t picked it up…Dr said it will help with pain…I told him what you said, about pain meds…scarey “….

Sep 19, 2018 · Post-MALS surgery in Digestive Health

Thank you….I feel much less helpless the more I learn….can I ask, is the bracelet for nausea or pain? And do people with MALS hold jobs? My advice to him is to try to go in the office for an hour or so…..to bring some kind of normalcy to his life…but not knowing the full extent of his pain and nausea,not sure if that’s the right advise…he says he can’t sleep…my thought is getting control of his life might help him sleep…what do you think?

Sep 18, 2018 · Post-MALS surgery in Digestive Health

thanks for the advise ….been reading for hours….no one talks about coping with pain……thank you! appreciate the help

Sep 18, 2018 · Post-MALS surgery in Digestive Health

looking for help, my son's best friend has been diagnosed with MALS…..apparently has suffered for months and months prior to diagnoses, he is a 38 yr old male….lives by himself and takes tons of meds to suppress pain, more to sleep, and some for depression, this young man grew up in my home, from 1st grade and cub scouts through adult hood, My son has asked me to intervene, as all this young man's friends feel he is abusing the medication…he has an appointment at the mayo clinic Oct. 1st …..but in the mean time I want to help? what can I tell him to eat? or Drink….after reading all the information I'm afraid to make a mistake…he is 5'10" and weighs about 115lbs…..I'm so concerned….please help me, help him….