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Posts (16)

Tue, Feb 12 7:11pm · Affects on smell? in Neuropathy

Could you please share the name of the company that is doing trials on SFN? Thanks so much, Rose

Tue, Feb 12 6:52pm · Does Small Fiber Neuropathy also cause muscle spasms? in Neuropathy

Wonderful information! Thanks!
Rose

Tue, Feb 12 6:26pm · Mayo Clinic staff/affiliated staff in Visiting Mayo Clinic

Once again, I thank you!
Rose

Tue, Feb 12 6:04pm · Does Small Fiber Neuropathy also cause muscle spasms? in Neuropathy

Hi, Can you tell me if you have pain, numbness or both. Also, what treatments and meds you've you undergone or taken? Thanks, Rose

Tue, Feb 12 5:43pm · Living with Neuropathy - Welcome to the group in Neuropathy

Another really terrific piece of info!!!!! I've been diagnosed positively with small fiber polyneuropathy and ANA. I've been taking hydroxychoroquine and azathioprine to 5 month and the numbness has continued up my body and the existing numbness has gotten worse.
Insurance won't cover IVIG and I can't afford it. The rheumatologist and the neurologist don't know what else to do. DO YOU OR ANYBODY HAVE ANY SUGGESTIONS? I HAVE ABSOLUTELY NO PAIN. I HAVE ONLY NUMBNESS. Thanks bunches to you John and everybody else!
Rose

Thu, Feb 7 1:21pm · Does Vitamin B-12 help with neuropathy of the feet? in Neuropathy

Thanks a big bunch,John, for sharing the nuts.com website. It provided do very much useful information. You're the best.
Rose

Thu, Jan 31 3:56pm · Small Fiber Neuropathy? in Neuropathy

I've been biopsied with a firm diagnosis of idiopathic small fiber neuropathy but have no pain whatsoever. I just have numbness which is getting worse and spreading. Has anyone at all been diagnosed with ANA and Lupus without any pain? I'll be starting IVIG very soon and any tips would greatly appreciated.
Thanks, Rose

Tue, Jan 22 9:53pm · Living with Neuropathy - Welcome to the group in Neuropathy

@sherlock have you found any improvement with the IVIG?

Also, what after effects have you experienced?

Thanks,
Rose