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WA

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United States of America

Postal/Zip Code
98371

Health Interests
Immune disorders

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Dec 21, 2018 · Hypogammaglobulinemia in Autoimmune Diseases

I really wish this wasn't as rare as it is nobody really has much info on hypogammaglobulinemia and its really frustrating to know that

Dec 21, 2018 · Hypogammaglobulinemia in Autoimmune Diseases

@johnbishop Being referred to immunology as we speak I'm not letting them drop the ball on this no way on earth will I give up till we know there are no more options out there I have only found 2 types of treatments for hypogammaglobulinemia infusion and bone marrow transplant and I'm not sure I'm so advanced that I need a transplant but beings my dr wouldn't talk to me I'm really not sure how advanced my condition is

Dec 20, 2018 · Hypogammaglobulinemia in Autoimmune Diseases

My doctor just gave up after only trying 1 type of immunoglobunlin infusion 3 treatments in total he said the painful side affects are to much but shouldn't I be the one to decide this? And he just gave up what does that tell a patient hes lucky I'm such a fighter

Dec 12, 2018 · Hypogammaglobulinemia in Autoimmune Diseases

@johnbishop thank you so very much this is a great start

Dec 12, 2018 · Hypogammaglobulinemia in Autoimmune Diseases

What is hypogammaglobulinemia? I cant tell you much because I have not found much myself on this topic except that my body has quit making antibodies I think. if any one has insight please add to this

Dec 10, 2018 · Primary Immunodeficiency in Diabetes/Endocrine System

There is not much on PIDD as of yet compared to other rare diseases