I really wish this wasn't as rare as it is nobody really has much info on hypogammaglobulinemia and its really frustrating to know that
Member not yet following any Pages.
@johnbishop Being referred to immunology as we speak I'm not letting them drop the ball on this no way on earth will I give up till we know there are no more options out there I have only found 2 types of treatments for hypogammaglobulinemia infusion and bone marrow transplant and I'm not sure I'm so advanced that I need a transplant but beings my dr wouldn't talk to me I'm really not sure how advanced my condition is
My doctor just gave up after only trying 1 type of immunoglobunlin infusion 3 treatments in total he said the painful side affects are to much but shouldn't I be the one to decide this? And he just gave up what does that tell a patient hes lucky I'm such a fighter