I am a trained patient and research advocate for the Cholangiocarcinoma Foundation. I was diagnosed with Intrahepatic Cholangiocarcinoma (also called Bile Duct Cancer) in April of 2016. Another patient(Micheal Carrel) and I have recently begun a patient education and support group called PAC--Patient Advocacy for Cholangiogiocarcinoma in Arizona--you can contact us through Raeane Veralrud, LMSW at Mayo Clinic Arizona or through this site.
Registered to be a Mayo Clinic Champion
Andrea Parrella earned this badge Wed, Oct 2 4:06pm