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Oct 31, 2018 · Liver Cysts with PKD in Transplants

Hi. Thanks for thinking of me. I havery sent information to Matiensure Hogan and am waiting to hear from her. The study has been put on hold but she was willing to review my situation and see if she has any help for me. Thank you so much for this reference.

Oct 10, 2018 · Liver Cysts with PKD in Transplants

I'very called twice and was told I would get a call. Still haven't heard back.

Oct 4, 2018 · Liver Cysts with PKD in Transplants

Thank you so much for thinking of me. I called Rochester to get into the study. I still have not heard back. It will be a week tomorrow. I plan on trying to call again in the morning.

Sep 21, 2018 · Liver Cysts with PKD in Transplants

Great. Thank you so much.

Sep 21, 2018 · Liver Cysts with PKD in Transplants

I think I will ask for a referral to Mayo. I have not really gotten any support on this at Emory.

Sep 21, 2018 · Liver Cysts with PKD in Transplants

I also have a nephrologist at home in NW Florida. So far no help with these avenues.

Sep 21, 2018 · Liver Cysts with PKD in Transplants

The issue is I got my transplant as a paired donor in 2012. Mayo did not do paired donors then so I had my transplant at Emory in Atlanta. Team at Emory do not seem to have any answers.

Sep 21, 2018 · Liver Cysts with PKD in Transplants

Thank you for your support. I too hope for an answer soon too. 🙂