@helena4000, it was probably me that posted that I was able to get off the transplant list. I was listed in 2016 for about 9 months, but my heart improved with meds enough that they were able to take me off the list. Unfortunately, my heart function has significantly declined again, and I'm going back on the list. Not losing hope….there's still a chance it will improve again and the transplant won't be necessary yet. I think eventually it is inevitable, but I'm trying to postpone it as long as I can.