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Posts (25)

Tue, Feb 18 6:37pm · Success with low dose naltrexone for Autoimmune disorders in Autoimmune Diseases

I have read a lot about it and I would definitely try it if I had problems. I tried to get my son to take it but he wouldn’t. It makes sense that it will help autoimmune diseases because of the way it works. Also, it’s not harmful and is such a small dose!

Fri, Jan 24 6:48am · Just started Xanax...anyone have experiences to share? in Depression & Anxiety

I think a much bigger problem is that too many doctors give prescriptions and never try to Find or fix the cause of the pain! Many of them don’t keep up on the latest in medicine, so all they know is to give out prescriptions.

Fri, Jan 24 6:40am · Just started Xanax...anyone have experiences to share? in Depression & Anxiety

Have you every had the antibody blood tests for Autoimmune Encephalitis? Sounds like you should! Your neurologist can have the blood drawn and sent to Mayo Rochester labs. I believe that’s the only place that does it. Please look up the symptoms. People have been misdiagnosed for years! It doesn’t always show antibodies but maybe you need to find neurologist familiar with this.

Fri, Jan 24 6:29am · Just started Xanax...anyone have experiences to share? in Depression & Anxiety

I forgot to say that the kind of melatonin that melts under your tongue is the fastest acting.

Fri, Jan 24 6:27am · Just started Xanax...anyone have experiences to share? in Depression & Anxiety

Be careful, it is very addicting! Have you tried taking a 1 mg melatonin? I’d even start with a 1/2 of a 1mg. I have never seen anyone that 1 mg didn’t work on. I’ve have suggested this to a few people and it works every time. Also, you should be practicing meditation and eating a healthy diet. Walking is helpful too, along with deep breathing. Life is hard sometimes but it doesn’t have to stay that way. So what if you made a mistake, we have all made them! Don’t be so hard on yourself and don’t worry about what other people think because that causes anxiety and doesn’t matter in the long run anyway. Only care what God thinks and live your life according to that! Always try to live the best life you can, be true to yourself and treat others well, only then can you have true freedom from worry. If you think you made a mistake with the move, give it a chance for a few months, knowing that nothing lasts forever! Good luck and let me know how the melatonin works. Try not to take Xanax! Many people get addicted to that when all they really needed was a lifestyle change, and a better way of thinking.

Fri, Jan 17 5:22am · Autoimmune mystery in Autoimmune Diseases

Did your wife get tested for Autoimmune Encephalitis? Any doctor can draw the bloodwork and have it send to Mayo Rochester lab. If she has a teratoma or a possible herpes virus, it’s a likely culprit. Most doctors are not familiar with it but there is a lot on the internet about it. You probably need to go to a teaching hospital and get a doctor that actually has treated it before, most have not! It can get a lot worse without treatment.

Fri, Jan 17 5:17am · Autoimmune mystery in Autoimmune Diseases

Have you been tested for autoimmune encephalitis?

Tue, Jan 14 7:22am · Autoimmune? Undiagnosed and don’t know where to go next in Autoimmune Diseases

Have your doctor send your blood to Mayo Clinic Rochester to check for the antibodies for POTS and also for Autoimmune Encephalitis. They have blood panels they do for both. That’s what we did with my son. Then find a very good neurologist (teaching hospital?) and join Facebook pages for both those diseases. Lots of info on there and recommendations. Also watch YouTube videos for doctors that know about it. Don’t let anyone tell you that you have a problem like depression or hypochondriac. You know when you are sick. Also, take your mom with you! They tend to be not as rude and condescending when you have someone else in the room. Good luck and let us know how it goes.