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Wed, Feb 6 10:23pm · Gallbladder surgery in Digestive Health

Hi. The most common cause would be an incision site hernia which is fairly common and is usually easy to diagnose. Sometimes it is obvious to see when flexing the abdominal muscles, otherwise an ultrasound will detect it. I had my GB removed in 2004 because they thought it was causing pancreatitis. They sent me home the same day after surgery and I had to go back by ambulance that night as I was blacking out. I was bleeding internally and lost 7 units of blood. I healed after a transfusion and 7 days in the hospital but it didn't stop the pancreatitis. After 7 years of pain and lots of endoscopes a tumor showed up in the tail of my pancreas on an MRI. A different surgeon started a laparoscopic distal pancreatectomy but had to convert to a full open procedure and removed half the pancreas and spleen. The operative report showed I was full of adhesions and fibrosis which caused the doc to convert from lapro to full open. This was probably caused by the blood loss of the GB surgery. The surgery did stop the pancreatitis but about a year after surgery I've had incisional pain but only to the left of the vertical incision. They ruled out hernia and the surgeon won't see me saying there is nothing that can be done. My now third GI doc is an old timer who is somewhat irreverent of the surgeons and said that there can be nerve damage that doesn't show up on an MRI or ultrasound. However I can't find a doctor that treats nerve damage. This link has good info:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5908491/

Dec 30, 2018 · Pancreatectomy in Digestive Health

Hi Kanaaz, been there, done that…

Dec 30, 2018 · Pancreatectomy in Digestive Health

Hi. Like the other replies, my condition is different. I had a distal pancreatectomy with splenectomy in 2012. My blood sugars were somewhat elevated at first but came down over the next year so I'm in the pre-diabetic zone. I've had lots of abdominal pain and digestive issues that my GI doc can not figure out. Actually I'm on my 3rd GI doc because they get frustrated with me and say there is nothing wrong. Recently I had an MRI finding of mesenteric panniculitis but there isn't much that can be done with that and the doc doesn't take that disease seriously. I've tried lots of alternative tests and supplements without much success. Basically I'm hanging in there hoping it will either get better or worse.

Oct 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi @kimh, You can get a better explanation by googling it but basically they locate a nerve bundle in the middle of your abdomen using a scanner called fluoroscopy or EUS (endoscopic ultrasound). Then they kill the nerves using alcohol injected through a needle. Usually it works for a few months to years depending on nerve regrowth. It's typically used for intractable pain from chronic pancreatitis or pancreatic cancer. I don't know if links work in this forum but here is a case study for MP.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4436925/

Oct 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

@aland Our symptoms and test results are very similar. Mine is completely left sided. My long time GI doc got so frustrated a few years ago that he said he will only see me once a year for a check up. There are only two GI practices in town with about 40 docs total and no one else would see me saying I was receiving adequate care. Eventually it was found that they have an agreement not to "poach" each others patients. After a few years of complaints to various officials they allowed me to see a new foreign doc who just graduated from a school in the Bahamas. There is a huge shortage of docs in the state. This doc was resentful of taking me on and didn't treat me well which is I hear common in his country. This year I found a semi-retired rural GI doc who has been supportive but has no experience treating anything like MP. I went to a pain clinic last week and was only allowed to see a nurse practitioner, apparently you only see the doctor for major procedures. They offer opioids on a very strict program which I'm trying to avoid. Otherwise they offered a celiac plexus nerve block which I am considering but there can be substantial side effects and without being able to discuss it with the doctor before the procedure I'm reluctant at this time.

Sep 30, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi JC, I have been tentatively diagnosed with MP from an MRI. I get an MRI every 2 years for recurrence of IPMNs in my pancreas. I too have more pain at night and especially the morning. Being horizontal is my biggest provocateur. Mine was probably caused by numerous abdominal surgeries. Unfortunately no one biopsied my panniculitis during the surgeries, they just wrote "dense fibrous adhesions". Now no one is willing to go back in to get a biopsy. I sense they think it's all in my head. I've been on prednisone for a week without any improvement. The NSAIDs helped but my stomach/bowels can not tolerate them. Acetaminophen helps. Pain meds are very hard to obtain in my state. I can't eat large or hard to digest meals. Apparently biopsy is the gold standard for diagnosis. Did you get your biopsy report?

Sep 2, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi J, From what I've read neither EUS nor colonoscopy can see or diagnose MP. Personally I've had 6 EUS in the last 10 years, some with ERCP and they never mentioned seeing MP. But just last week on my annual MRI a new radiologist noticed the MP and also said he could see it on scans (MRI or CT) going back at least 6 years. Your doc probably wants to rule out pancreatitis, stones, etc.

Aug 31, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Von, I'm a newbie here and newly diagnosed but have a long history of abdominal surgeries. I'm located in Reno and read that you are in Vegas. Have you found a doc there that is knowledgeable in MP? I can't get treatment here but could jump on a plane if there is a doc you can recommend in Vegas