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Sep 3, 2018 · Frustrated in Autoimmune Diseases

Karl, Thank you for sharing your story. And, what a story it is. Are you sure you have never been pregnant? Lol Allmkidding aside, very interesting. I will check out the videos you referenced. Thanks again.

Sep 3, 2018 · Frustrated in Autoimmune Diseases

Thank you for your welcome and response. My mom always told me to never lose my sense of humor or my faith! To answer your question, my current Rheumatologist simply blames every sign and symptom I have on fibromyalgia and she is a board certified Lupologist. Thank you too, for all the references. I will continue to do my due diligence.

Sep 3, 2018 · Frustrated in Autoimmune Diseases

Karen, I appreciate you saying so. Either that or a hypochondriac! Lol

Sep 3, 2018 · Frustrated in Autoimmune Diseases

No, I have not. I will do some research. I thank you for your input.

Aug 29, 2018 · Frustrated in Autoimmune Diseases

I need advice! During my last pregnancy, at the age of 43, I experienced several episodes of a skin rash following sun exposure. Red, nickel-sized, raised welts on my upper arms, torso and back. Funny thing, the rash didn't itch rather it hurt deep in my tissue. I miscarried at 16-weeks, 8 weeks later I saw a Dermatologist and I just so happened to have this rash at the time of my appointment. The Dermatologist performed a skin biopsy. The results came back with a positive ANA 1:6.4, homogenous, all other "Antibodies" negative, except a high anticardiolipin IgM antibody. During my first trimester I had an elevated d-Dimer – 2.51(i.e, increase risk for a pulmonary embolism). CT scan was negative.
Fast forward 10 years: I have an official diagnosis of SubAcute Cutaneous Lupus, Fibromyalgia, Chronic Fatigue Syndrome, Osteoarthritis of my lower back/cervical spine, R Sciatica with radiculopathy and neuropathy, Chronic Kidney stones, proteinuria/hematuria, borderline thrombocytopenia, tendinitis of R shoulder/elbow, joint pain with morning stiffnes, PTSD encompassing insomnia/social behavior disorder/anxiety/major depressive disorder, mucosal sores, alopecia, hx of infections (e.g. urinary tract, kidney, candidiasis, bacterial vaginosis, chronic bronchitis, herpes zoster), metacarpalpharengeal and bilateral wrist neuropathy, occasional swelling in hands/feet, cognitive dysfunction (i.e, memory loss, inability to maintain focus/concentration, disorganization, low tolerance), headaches/migraines, dizziness with occasional vertigo and syncopal episodes, IBS, GERD, OSA with CPAP, and PLMD, Pleuritic chest pain, SOB, Premature Atrial Contractions, COPD, and decreased Diffusion Lung Capacity. The only symptom I do not have is "weight loss!" Go figure! Thanks menopause! Lol
I am a twin and my mother has Crohn's Disease. In the past 10 years I have seen a total of 5 Rheumatologists both in the private sector and within the VA healthcare system. That is where I am currently receiving my healthcare. I cannot get my Rheumatologist to listen to me regarding Systemic Lupus. What to do?