Okay, Thank you Lisa.
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I do have celiac and I am vigilant about no gluten and it's not hard because I can't eat. Karl has hit the nail on the head. My condition is serious. He says I have Amyloidosis and my husband and I feel he is 100% right. I have a confirmed diagnosis of fibromyalgia. Immune deficiency, arthritis, and so many other things that only a really severe diagnosis is going to be right at this time. I have spept at least 10 years going to doctors and they agree I am very sick. It has been documented that all my relatives have some for of autoimmune disease and some form of cancer. Thank you all for your help.
I have had three upper endoscopy and four colonoscopy. No treatment has been offered. I think it's time I go to a place like the Mayo Clinic for real diagnosis. Thank you for the welcome. I appreciate your help and interest in my medical problems.
Thank you Karl so much. You have given me more information in just five minutes than any doctor I have ever seen and I have been going to doctors here in Boston for more than 40 years. I will look up all the information you have just given me. I'm not happy to know this could be my end but I am happy to know what is happening to my body. I use to be a very active and a very happy person and then, one day I literally just went down and never got back up. I have one daughter and she too has the IGg deficiency. We just learned this. My mother is 80 and has Leukemia and hemolytic anemia, which they claim she is now dying from. She also has IGg deficiency, So everything you have just told me seems to be right on the money. Thank you again Karl.
I also suffer from an autoimmune disease. I have IGg and IGm deficiency. My my spine is squished and that is when I started having horrible pain. I was 47. I am now 57. I was not diagnosed with my autoimmune deficiency until I was 48. I always felt tired when I woke up my whole life. I now Have Fibromyalgia, pre-colon cancer (which has been removed) two months ago, acid reflux, low vitamin D, Pain in my stomach always. In the las three years my real problems started getting really bad. Every time I eat, I feel so full and so sick. I had trouble being constipated or having diarrhea. Mostly constipated. The worst of all of this is I now get super sick from eating so I don't eat much at all, but eventually I get sick from my food sitting in my system and not going anywhere. My biggest question and fear is; when I eat my temperature plummets to 94.5. When I eat I become very cold and sweat. I can't move and I slip into what I call a coma like state. I have been to so many GI doctors. They have all tried to help but no doctor seems to even comprehend why my temperate would drop so low. I can't work and I can't have a life, so of course I am very depressed. I ma in bed almost all day everyday. My thyroid is pretty normal but all my family has thyroid disease and take meds. for it. All my doctors say I am not in a level that would need thyroid meds. My thyroid is 3.5. My hair is falling out too. Is this going to continue to just be my life? Anyone have any ideas? I would be so grateful.