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Sep 3, 2018 · Undiagnosed for 3 years in Digestive Health

@oldkarl thank you again. I did have a liver biopsy 1 1 /2 years ago because all of my liver function blood tests were fine but I had an unexplained enlarged liver. When the did my biopsy it all came back normal.

Sep 3, 2018 · Undiagnosed for 3 years in Digestive Health

@oldkarl thank you. I am definitely going to bring this up to my GI.

Sep 3, 2018 · Undiagnosed for 3 years in Digestive Health

@oldkarl Thank you so much for all of the information. Out of curiosity – what makes you think this could be the possibility of what is happening with me? I was reading through your story and so far, the only symptoms I have on a regular basis are upper abdominal pain, loose stool (constantly) and recurring mouth ulcers.

Sep 3, 2018 · Undiagnosed for 3 years in Digestive Health

@sita I don't think I experience any of the neurological symptoms. I get headaches from time to time but I would say that is the most of that. So far at least. What kind of neurological symptoms do you experience?

Sep 3, 2018 · Undiagnosed for 3 years in Digestive Health

@c130 thank you. I look forward to reading your response.

Sep 3, 2018 · Undiagnosed for 3 years in Digestive Health

@sita My main symptom is pain that feels like I am being stabbed from the inside out. It's in my upper left abdomen mostly but times it does radiate to the right and to my back. I also frequently have diarrhea, almost all the time. Have the doctors suggested what they think it might be for you?

Aug 24, 2018 · Chronic Abdominal Pain in Digestive Health

@gman007 Gary – just out of curiosity, which medical university did you go to? Thank you so much for your reply and all of your input. I hope today is a good day for you 🙂

Aug 24, 2018 · Chronic Abdominal Pain in Digestive Health

@gman007 Thank you so much for your reply. I don't remember offhand what the four were offhand, I remember one was hyperchoic foci or something along those lines. I had a pancreatic function test done by one of the top pancreas specialists in the world and he really felt that it was not my pancreas, despite the findings on the EUS. My pancreatic function test was normal. The EUS is the only test that showed a few abnormalities. I am able to sleep. Some days I have no pain, some days I am laid out on the bed with my heating pad, running to the bathroom every so often. I don't really ever experience nausea and have never thrown up from it. But yes, the pain is right where you described it. I guess Mayo would be my next step but it's just difficult getting there for me.