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Posts (68)

Tue, Oct 29 5:39pm · New type mouthpiece for Albuterol in MAC & Bronchiectasis

@ethanmcconkey i have not heard of this mouthpiece but am interested, I like the idea of faster delivery, and battery operated (travel) Will be checking it out. For now, I would just use it for saline, I couldn't tolerate the nebbed Albuteral, made my heart race. Thanks for bringing it up!

Fri, Oct 11 2:41pm · Percussion vest in MAC & Bronchiectasis

@gj53 sure, why not? Ask your doc to recommend a nebulizer unit and either the 3% or 7% saline solution. These things can be bought thru various websites, or your Part B insurance covers it. (If you're in the US) It's covered under DME (Durable Medical Equipment) and so is the saline under Part B as its used with the DME. I had a heck of a few months getting insurance to pay for the saline because the pharmacy kept running it through Part D prescription meds. It took just 1 "rotating" pharmacist to call that to my attention. Also, you can poll people on here about the nebulizers they like and why. Best to you. Margie

Thu, Oct 10 2:07pm · Percussion vest in MAC & Bronchiectasis

Hello @gj53 I'm diagnosed w Bronchiectisis and MAC, and I didn't produce much sputum when first diagnosed over a year ago. My percussion vest (inCourage Airway Therapy Vest) was the 1st investment on my journey to better health. I didn't think it did much for the first couple of months but was assured it was loosening the mucus in my tubes. I did a puff on an albuterol inhaler first to open up my airways. Thinking bigger is better I asked my doc for the nebulizer albuterol and couldn't tolerate it either. Made me too jittery. I did start nebulizing every morning w 7% saline solution (moisturizes, thins the mucus,cleanses) following up w the vest. Most days I can now cough up a couple or a few big plugs. The machine is expensive everyone's co- pay is different. Best of luck with your decision. Margie

Mon, Sep 23 6:33pm · Pneumococcal Vaccinations against pneumonia in MAC & Bronchiectasis

@alleycatkate i don't know which pneumonia shot I got, but I see my pulmo doc tomorrow and we'll discuss it.

Mon, Sep 23 11:33am · Pneumococcal Vaccinations against pneumonia in MAC & Bronchiectasis

@alleycatkate Hey Kate, I got both the flu and the 1 pneumonia shot last fall and was hospitalized this past spring due to having both at the same time! Was told there are so many strains of flu and pneumonia and it could have been worse. We're all different tho…

Fri, Aug 23 9:51pm · Any advice out there? in MAC & Bronchiectasis

@sylvermoon8 I was on a lower dose for 2 weeks and developed the tendinitis the warning label speaks of. Usually more prone to this if you have RA (rheumatoid arthritis) which I do not have. But I do have significant arthritis. I'm 59. Just be aware of any muscle achiness around your ankles, calfs, knees, and shoulders. Other than that I had no other side effects like nausea. I always start a new medicine on a light tummy and well hydrated.

Fri, Aug 9 6:06am · Helpful Devices for MAC in MAC & Bronchiectasis

@flib I've been using the inCourage airway clearance vest. I use it once a day in the morning right after the saline nebulizing. Medicare paid for mine. I can tell when I miss a day, so I know it helps.