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Posts (63)

Fri, Aug 23 9:51pm · Any advice out there? in MAC & Bronchiectasis

@sylvermoon8 I was on a lower dose for 2 weeks and developed the tendinitis the warning label speaks of. Usually more prone to this if you have RA (rheumatoid arthritis) which I do not have. But I do have significant arthritis. I'm 59. Just be aware of any muscle achiness around your ankles, calfs, knees, and shoulders. Other than that I had no other side effects like nausea. I always start a new medicine on a light tummy and well hydrated.

Fri, Aug 9 6:06am · Helpful Devices for MAC in MAC & Bronchiectasis

@flib I've been using the inCourage airway clearance vest. I use it once a day in the morning right after the saline nebulizing. Medicare paid for mine. I can tell when I miss a day, so I know it helps.

Thu, Feb 28 12:49pm · Are Nebulized saline and Aerobika beneficial? in MAC & Bronchiectasis

@lmh7 Hello,,I too am a "non-producer" and had to have a bronchoscopy to obtain sputum. My doc didn't advise any lung clearance therapy for that reason but I pushed for an got a therapy pulsating vest, an Aerobika device and 7% saline to use in my nebulizer.
I have never coughed or produced after using the vest but I feel it must be "shaking things loose" so I use it 1 x day.
I've never gotten sputum from the Aerobika and seldom use it, although I hear other people have great results w this.
The greatest lung clearance/cleanse for me is using the 7% saline in my nebulizer. When I was at the doctors recently, specifically to give sputum, I couldn't bring forth anything. I had nebbed that morning and the night before and was clean and clear. I had to take sputum cups home and mail a sample in, which I did. The trick for me is to wait at least 3 days to nebulize, then I have enough to culture.
Just yesterday I told my doc I was nebulizing every other day and he asked me to please at least do it once a day to keep my lungs clean and less of a breeding ground.
I think any and all that we do, therapy-wise, can't harm us, only help. Just my thoughts.

Thu, Jan 10 1:52pm · Big 3 and weight loss in MAC & Bronchiectasis

@hopeful33250 Thanks! That's easy enough!

Thu, Jan 10 10:47am · Big 3 and weight loss in MAC & Bronchiectasis

@hopeful33250 Hi Teresa! Please share what breakfast drink you are adding to your coffee, thank you!

Wed, Jan 9 9:19pm · Specialist in North Carolina in MAC & Bronchiectasis

@macjane I'm just seeing this now, I'm so sorry the list is outdated. Perhaps for you it's good news tho….don't you have an appt scheduled at Mayo this spring? It may be just the answers to your prayers…hang in there. Margie