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Posts (58)

Thu, Jan 10 1:52pm · Big 3 and weight loss in MAC & Bronchiectasis

@hopeful33250 Thanks! That's easy enough!

Thu, Jan 10 10:47am · Big 3 and weight loss in MAC & Bronchiectasis

@hopeful33250 Hi Teresa! Please share what breakfast drink you are adding to your coffee, thank you!

Wed, Jan 9 9:19pm · Specialist in North Carolina in MAC & Bronchiectasis

@macjane I'm just seeing this now, I'm so sorry the list is outdated. Perhaps for you it's good news tho….don't you have an appt scheduled at Mayo this spring? It may be just the answers to your prayers…hang in there. Margie

Wed, Jan 9 9:12pm · Does anybody know if there is a MAC specialist at Emory (Atlanta)? in MAC & Bronchiectasis

@macjane Jane I don't quite understand what you mean about the chart for state doctors and MI (you ARE talking Michigan?) nor North Carolina being entered properly. When I go to http://www.ntminfo.com, there are several specialists listed for both Michigan and N Carolina. Scroll down to about the 3rd "conversation" tab and it says "Physician Referrals". Then you look up by state. If you have done all this already and still no luck, I apologize for hammering this info back at you again. And Duke? What happened there? Prayers for patience for all of us!! It's wearisome at times.

Wed, Jan 9 9:08am · Does anybody know if there is a MAC specialist at Emory (Atlanta)? in MAC & Bronchiectasis

@macjane Glad you're back. Wishing you the very best as you seek a new primary care doctor! This can seem repetitive and tiresome but hopefully you will see it as a wonderful opportunity to get a second opinion and new set of eyes to look at your case! My second opinion appointment w an NTM and Bronchiectisis specialist is tomorrow afternnon in Atlanta! I'm so excited! I'm ready to know in more detail what kind of bacteria is in my sputum. And be treated accordingly. I will post answers as I get them. Say a prayer for me plz!

Wed, Jan 9 8:53am · Big 3 and weight loss in MAC & Bronchiectasis

@sueinmn I'm a big fan of peanut butter. On everything. Sliced apples, toasted bread w honey. Mixed in w vanilla yogurt. Slathered on a Little Debbie Oatmeal Cookie. Also mayo and salad dressings. I have limited my dairy some due to it causing congestion for me, which included milk, cheese and cottage cheese. Its a challenge for sure. I'm not affected by nausea, but sometimes anxiety cuts my appetite. I just push thru and eat.

Sat, Jan 5 7:07am · tips for travel in MAC & Bronchiectasis

Am curious about the microwave too. I purchased a baby bottle sterilizer for my Aerobika and Pari Nebulizer (which looks to have a thin piece of metal in a compartment) didnt think you can put metal in a microwave. I dont think the Aerobika has metal…