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Posts (81)

Tue, May 5 10:11am · Nebulizing Equipment in MAC & Bronchiectasis

@auntnanny You're welcome, we always need to mindful that we all respond differently to medicines. I wish you the best of health.

Mon, May 4 7:08pm · Nebulizing Equipment in MAC & Bronchiectasis

@woot I was prescribed Arikayce (Amikacin liposome inhalation suspension) and the Pari eRapid Nebulizer system is the delivery method that came with the meds. One day I tried my saline in it and wow, 2 minutes! That's when I called the company and found out it was OKAY to do this and 2 minutes was the usual time for saline. They cautioned me to clean it real well as the saline is sticky. They (Nebology) work w your insurance but its listed at $160 for the handset and $879 for vibrating mesh technology compressor. Anyhoo, that's some info.

Mon, May 4 6:57pm · Nebulizing Equipment in MAC & Bronchiectasis

@woot i bought and used the Pari LC Sprint reusable handset. The site says 5-6 minutes. Its reusable, boilable (I do) dishwasher safe (I don't) and says its good for 6 months. From Just Nebulizers $15.95, includes tubing.
Always check with your doctor. Yours is one of the best.

Mon, May 4 6:43pm · Nebulizing Equipment in MAC & Bronchiectasis

@auntnanny after being on the big 3 for a year w no improvement, an inhaled medication Arikayce (Amikacin liposome inhalation suspension) was added to my regiman of meds. I was diagnosed w bronchiectas, MAC/MAI and Pseudomas. My doc said its good for knocking out Pseudonomas too. I have been MAC and Pseudonomas free for 5 months, but I never experienced the violent coughing you speak of. I have had absolutely no problems w the Arikayce aside from a low voice for a few days when I started.

Mon, May 4 8:40am · Nebulizing Equipment in MAC & Bronchiectasis

@woot I have to leave for an appointment, but I'll try to get back w you tonite with the name and model numbers of the equipment I'm using. (I'll have to research!)

Mon, May 4 8:35am · Nebulizing Equipment in MAC & Bronchiectasis

@alleycatkate it is fast, so fast I thought maybe slower would be better and have time to settle into my lungs better, That's when I called the number on the Pari Nebulizing System and was told by that company that's the correct amount of time, delivering saline, using that particular equipment. I researched it and its and expensive! Before that I used the Pari and a regular Sunset compressor and it took about 12-15 min, like you say.

Mon, May 4 8:27am · Nebulizing Equipment in MAC & Bronchiectasis

@auntnanny yes and no. The Pari you speak of, I did use it for albuterol and saline. Then I started on Arikayce which has a different mouthpiece and compresser, also made by Pari, and I now use that for nebbing Arikayce and saline. Hope my answer is helpful and not more confusing.

Sun, May 3 3:40pm · Nebulizing Equipment in MAC & Bronchiectasis

@auntnanny When I nebbed the albuterol, i used the same mouthpiece for both with no problem.