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Posts (61)

Thu, Feb 28 12:49pm · Are Nebulized saline and Aerobika beneficial? in MAC & Bronchiectasis

@lmh7 Hello,,I too am a "non-producer" and had to have a bronchoscopy to obtain sputum. My doc didn't advise any lung clearance therapy for that reason but I pushed for an got a therapy pulsating vest, an Aerobika device and 7% saline to use in my nebulizer.
I have never coughed or produced after using the vest but I feel it must be "shaking things loose" so I use it 1 x day.
I've never gotten sputum from the Aerobika and seldom use it, although I hear other people have great results w this.
The greatest lung clearance/cleanse for me is using the 7% saline in my nebulizer. When I was at the doctors recently, specifically to give sputum, I couldn't bring forth anything. I had nebbed that morning and the night before and was clean and clear. I had to take sputum cups home and mail a sample in, which I did. The trick for me is to wait at least 3 days to nebulize, then I have enough to culture.
Just yesterday I told my doc I was nebulizing every other day and he asked me to please at least do it once a day to keep my lungs clean and less of a breeding ground.
I think any and all that we do, therapy-wise, can't harm us, only help. Just my thoughts.

Thu, Jan 10 1:52pm · Big 3 and weight loss in MAC & Bronchiectasis

@hopeful33250 Thanks! That's easy enough!

Thu, Jan 10 10:47am · Big 3 and weight loss in MAC & Bronchiectasis

@hopeful33250 Hi Teresa! Please share what breakfast drink you are adding to your coffee, thank you!

Wed, Jan 9 9:19pm · Specialist in North Carolina in MAC & Bronchiectasis

@macjane I'm just seeing this now, I'm so sorry the list is outdated. Perhaps for you it's good news tho….don't you have an appt scheduled at Mayo this spring? It may be just the answers to your prayers…hang in there. Margie

Wed, Jan 9 9:12pm · Does anybody know if there is a MAC specialist at Emory (Atlanta)? in MAC & Bronchiectasis

@macjane Jane I don't quite understand what you mean about the chart for state doctors and MI (you ARE talking Michigan?) nor North Carolina being entered properly. When I go to http://www.ntminfo.com, there are several specialists listed for both Michigan and N Carolina. Scroll down to about the 3rd "conversation" tab and it says "Physician Referrals". Then you look up by state. If you have done all this already and still no luck, I apologize for hammering this info back at you again. And Duke? What happened there? Prayers for patience for all of us!! It's wearisome at times.

Wed, Jan 9 9:08am · Does anybody know if there is a MAC specialist at Emory (Atlanta)? in MAC & Bronchiectasis

@macjane Glad you're back. Wishing you the very best as you seek a new primary care doctor! This can seem repetitive and tiresome but hopefully you will see it as a wonderful opportunity to get a second opinion and new set of eyes to look at your case! My second opinion appointment w an NTM and Bronchiectisis specialist is tomorrow afternnon in Atlanta! I'm so excited! I'm ready to know in more detail what kind of bacteria is in my sputum. And be treated accordingly. I will post answers as I get them. Say a prayer for me plz!