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Fri, Aug 30 4:49pm · My husband is having a septal Myectomy in Hypertrophic Cardiomyopathy (HCM)

I had a septal myectomy last August. I was down for about 4 weeks and had 6 weeks of cardiac rehab. I feel so much better. I wish him the best.

Tue, Aug 20 10:53am · SERMs and AIs - Choosing not to take them in Breast Cancer

Everything I've read has led me further from them. I wish you 20 more healthy, cancer-free years.

Fri, Aug 16 10:45am · SERMs and AIs - Choosing not to take them in Breast Cancer

I followed much the same path. My oncologist came recommended by gynecologists (who happen to be my best friends) and by friends who had worked with him during their surgeries. I am confident that he's got my best interest in mind. If I wasn't dealing with both a history of blood clots and heart issues, He understood that my cardiologist wasn't comfortable with radiation and agreed with him, so a lumpectomy was ruled out.

The side effects I might be able to deal with but those, combined with my history and existing health concerns, have me leaning toward forgoing these drugs. Bone loss, heart issues, and blood clots are just too scary. Tuesday my husband and I sit down with the doctor. If the chances of reccurence aren't high, I'm going to decline. I agree that no one gets out alive, but I want my final years to be as good as they can be.

My mother was diagnosed at the same age I am (68). She had a mastectomy, no radiation or chemotherapy, and no long term therapy. I'm not sure that was even an option 34 years ago. She lived well for 20 more years and didn't have cancer when we lost her.

Unless the doctor can offer a compelling argument and after a second consultation with my gynecologists/friends, I'm leaning toward refusing a SERM or AI.

Can I ask what you take, how long you've been on it, and what the side effects are? Learning more about what to expect from real people will help me make a decision. Thanks much.

Thu, Aug 15 1:23pm · SERMs and AIs - Choosing not to take them in Breast Cancer

I think I'd rather leave it here. I'd like to hear about SERMs and AIs. Thanks anyway.

Thu, Aug 15 7:30am · SERMs and AIs - Choosing not to take them in Breast Cancer

I had a SMX, Stage I, no lymph node involvement, four weeks ago. I'm HER2 Negative, ER Positive and PR Positive. I've had open heart surgery for Hypertrophic Cardiomyopathy and Afib. Many years ago (50 years) I had blood clots in my lungs attributed to birth control pills, so I've never taken hormones. I've read all the side effects and am inclined not to take these medications. Has anyone else opted not to follow their doctor's advice about this protocol?

Thu, Jun 13 2:10pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Dr. Said did my surgery last August. It was a success and I enjoyed him and his team.

Thu, Jun 13 2:08pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

My Medicare and supplemental insurance covered everything.

Sun, Jun 9 3:43pm · Sharp quick pains post myectomy - Any thoughts? in Hypertrophic Cardiomyopathy (HCM)

Between your houlder blades? I had them, but the bigger problem I had was pain from brachial plexus.