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Posts (6)

Sep 14, 2018 · Chronic dizziness and vestibular migraines in Ear, Nose & Throat (ENT)

Good day
I recently created a discussion group,. "Vestibular Migraine" as I did not find any postings regarding this ailment. I just came across Kim's post from two years ago and the subsequent messages. I am not sure why our groups do not cross-relate, but you might be interested in my and others' postings relating to VM, with sub-elements of dizziness and severe headaches. many thanks

Aug 22, 2018 · vestibular migraine in Brain & Nervous System

Jennifer, you are most welcome. And, you are spot on about being your own advocate. That is the reason why I am leaving Hopkins and, thank goodness, going to Mayo, because I just don't have the time, and energy, to waste being sick and having a Dr. who isn't solving the issue. I exercise as much as I can, have removed most stress in my life, eat very well, and feel ready, mind and body, to begin again with Mayo. Your posts have really helped me to approach my forthcoming appointment with trust and ease: thank you again! all the best

Aug 22, 2018 · vestibular migraine in Brain & Nervous System

Jennifer, your account of how Mayo healed you moved me. I find it astonishing that five prior surgeons did not want to take on your case. From what I continue to learn about Mayo, they seem to be the last resort for patients with troubling medical issues but, more importantly, they know how to diagnose and treat, with expertise and compassion. I also enjoyed learning that you are an artist and that Mayo enabled you to return to your passion: I am so happy for you. Thanks to your account of your experience with Mayo, I am looking forward to my visit. My husband will be with me, so I am now confident that it will be a revealing experience, in all senses. I will keep you posted! best and paint away

Aug 16, 2018 · vestibular migraine in Brain & Nervous System

Dear Uldiver,

I had not and checked it out. I have spent a good part of the last year trying to identify triggers and to the best of my ability, the triggers do not appear to be food. I want to wait to see the Dr. at Mayo before proceeding with any vestibular rehab therapy as they accepted me today for an appointment with a neurologist. I appreciate your recommendation and thanks again.

Kind regards,

Kathryn

Aug 16, 2018 · vestibular migraine in Brain & Nervous System

Dear Jennifer,
Thank you for your thoughtful and detailed post. My Dr.'s and I had not considered your hypothesis. However, I recall that a chiropractor that I saw about 5 years ago took an X-ray of my neck and he said that there was some compression of my C3 and C4 neck vertebrae. Much of what you explain, especially about the arms weakness, makes complete sense. However, my neurologist, the one prior to seeing the Hopkins specialist for VM, did review the X-Ray but had no significant observations. I am so pleased to report that Dr. Robertson at Mayo only today agreed to see me; I am convinced that she order all kinds of head and cervical tests. And, I am sure she will consider TOS.

With respect to your diagnosis and surgery, I am pleased to hear that you are doing better. How was your experience with your Dr. and the neurology group over all?

Thank you again for taking the time to write to me.

Kind regards,

Kathryn

Aug 12, 2018 · vestibular migraine in Brain & Nervous System

good day members,

Johns Hopkins diagnosed me with vestibular migraine a little over one year ago. Prior to that no one knew what I had and I saw ENTs, neurologists, and many other Dr.s. MRI of close to two years ago shows all is normal. However, despite a respite of feeling almost normal for three months while taking a new medication (Effexor extended release at 75mg.) all of my symptoms came back full force for what I call episodes, at least once a week, and lasting up to three 3 days in bed. My symptoms for the last two years have been: popping ears, nausea, vertigo at the beginning which seems to have gone away and been replaced by dizziness and light headedness, tingling all over head, severe headaches, weakness to almost numbness in my arms, and severe fatigue. I can feel like a pressure in my head at times. I have not lost cognitive functions: that only occurred when I took Topiamate. My internist wants me to see a specialist at the Mayo Clinic, but I wonder if anyone else has experienced what my Hopkins Dr. calls very atypical VM symptoms?