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Posts (5)

Aug 31, 2018 · Burning Pain Right Side Head, Neck, Shoulders...possible neuralgia? in Brain & Nervous System

Thanks Lisa. Yes, I had intense physical therapy for two weeks (after headache 'hit" me one day, out of the blue) it did not help. I have also had numerous blood test, scans, physical evaluations, etc. etc. etc. I never really had lower back or back pain… Mine is definitely GCA & PMR. I responded to Prednisolone within 8 hours of taking first dose… and have been on high dose steroid for 9 months now and have both somewhat under control. Good luck

Aug 30, 2018 · Burning Pain Right Side Head, Neck, Shoulders...possible neuralgia? in Brain & Nervous System

Hi, I was diagnosed in November 2017 with Giant Cell Arteritis (GCA) and Polymyalgia Rheumatic (PMR)… GCA gives you a wicked headache (that does not respond to OTC pain meds), pain behind the eyes, pain in temple(s) and in the back of the head where your skull meets your neck… it is difficult to turn your neck side to side or look up. You also get pain down neck and into shoulders… across shoulder blades and across collar bones. You are extremely fatigued and you feel like crap! PMR is in your hips, thighs, buttocks and maybe lower back… an achy, dull pain that won't stop. The two go hand in hand. The only treatment is corticosteroids, and if it is GCA and not treated YOU RISK GOING BLIND! So get it checked out soon!!!!! Good luck!

Aug 11, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Hello, Thank you that was a good tip… I will be asking the Neurologist about both, when I see him/her on the 21st of this month. Many thanks, Melissa

Aug 11, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi John, Thanks so much for your response. I take the following meds/supplements: Prednisolone 30mg, Aspirin 75 mg,
which I am looking forward to. it has taken months to get this appointment as I live in the D3 1500 mg, GI Probiotic Supplement, Omega 3 w/Vit D, Magnesium Citrate 200mg, Organic Raw Bone B Complex 360 mg, Propranolol 20 mg. None of which I saw on the list (which was very helpful by the way! )

I am not on statins, but should be. My cholesterol is very high and I have the same conversation each month with my GP about staring on Simvastatin; I refuse to start taking it now with al the other issues.

As mentioned my bloods are taken every 8-10 weeks and my sugar levels have always been within normal range.

I have an appointment with a Neurologist on the 21st of this month, which I am looking forward to. It has taken a couple months to get this appointment as I live in the UK and had to beg for a referral under the NHS. ( I am an American Expat living her with my husband. )

Thank you so much for the response… It is good to know I am not alone!
Melissa

Aug 10, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Thank you. Hi, I am a 64 year old female who has (for the last 3-4) months experienced symptoms such as; numbness, cold (but warm to the touch), tingling, pins & needles, burning, and painful feet and hands. I have had an EMG, but was told the results were "normal." I was also told that the results mean only that my symptoms are not being caused by measurable, damage to the peripheral nerve or nerve coverings, so the cause is still unknown. I have frequent blood work, because I have GCA & PMR (diagnosed in 11/2017), but have been told my symptoms above are not related to my AI diseases or the high doses of Prednisilone I am taking. Any ideas, thoughts or comments are welcome. Thanks