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Aug 15, 2018 · Seeking help, information, support... in Neuropathy

@jenniferhunter

That is some very helpful knowledge and experience to have. While I don't have that level of experience, my father-in-law (pathologist), sister-in-law (pediatrician), and brother-in-law (OB) are all doctors. The interesting thing is the pediatrician is married to the OB and they're expecting their first child later this year!

You made a very good point in that it's the doctor's job to make the diagnosis. I've driven myself crazy with making my own. I just try to stay in a positive state of mind and not pay too much attention to what's going on with my feet.

Aug 15, 2018 · Seeking help, information, support... in Neuropathy

I do pray read the Bible for help/encouragement. I'm not trying to starting a debate about Christianity or religion, but simply wanted to mention it.

Aug 15, 2018 · Seeking help, information, support... in Neuropathy

@jenniferhunter

Thank you for taking the time to reply. I don't think any of my meds are causing the symptoms. At the time the sensations started I was taking 50mg of atenolol twice a day and 4,000 units of Vitamin D. I've gone back on Prozac since then to help with the worry/anxiety.

You mentioned that education goes a long way toward calming fear of the unknown. As I've mentioned previously, I did a lot of reading online about neuropathy and diabetes to my detriment. I had a fasting blood glucose AND A1c tests done. However, I then read online that those two tests can be normal and that an oral glucose tolerance test could, in fact, show a person has pre-diabetes or diabetes. I expressed my concerns to the neuro about it and, at this time, he does not see enough information to be concerned about diabetes. This was an example of how I went overboard with this whole thing resulting in more anxiety.

When the sensations come I feel the anxiety build and try to keep it at bay. I have no interest in going back to the way things were. Thank you for mentioning the books as well.

Aug 15, 2018 · Seeking help, information, support... in Neuropathy

@artscaping,

Thank you for the reply. There are times when I still get worried/anxious when I get the sensations in my feet, but it's no where near as bad as it was, say, even two weeks ago. I imagine going back on Prozac and seeing the therapist have helped. Thankfully, my appetite is back and I am sleeping a bit better. I do have Xanax to help with sleep, but try to avoid it. It only lasts a few hours and, as I've mentioned before, my doctor said that is not a long-term solution.

The sensations are intermittent and sometimes do not happen for a few hours. The pain hasn't changed for the most part. I am very thankful to be able to sleep at night. Yes, I do worry it might get worse, but it doesn't consume me as it did not too long ago. Lately, I've been able to avoid excessive worry causing knots in my stomach, loss of appetite, lost sleep, occasional dry heaves and crying fits. I was a mess.

I've done all kinds of reading online about neuropathy and the different treatments. There is SOOOOOOO much information to consume. It's not easy trying to figure out what would work for an individual. Frankly, I wouldn't want my first choice to be an anti-seizure med like Gabapentin if the pain gets worse. I'd ask my neuro what other avenues we could explore.

I've seen the Youtube videos of chiropractors that claim to have a great success rate with treating neuropathy. I saw one video from a doctor in Wisconsin touting how effective stem cell treatment can be. However, I try to keep my faith in the doctors at the Cleveland Clinic. Will I end up having to go to Mayo or another facility out of state? Who knows?

There are more tests to run which, of course, means being patient as the doctor(s) try (tries) to figure out what's wrong. I try to focus on other things. Yes, I worry that I'll get a pins/needles feeling, numbness, or other symptoms and, if that happens, that it might spread. Just trying to stay positive because what we believe/think in our minds has a great impact on us.

Aug 13, 2018 · Tucsonguy neuropathy! in Neuropathy

Tucson,

Hello and welcome to the forums. Based on what you mentioned, my first question is: are your BG numbers under control? That can make a difference in how the diabetes is affecting your neuropathy. You certainly want to get a handle on your glucose levels as soon as possible to prevent further damage to ANY part of your body. I'm new to this forum and have found the people to be helpful, supportive, and caring. I would suggest you speak to @johnbishop regarding this matter. I don't believe he's diabetic, but he has great information to pass along. There are many different things to try for the pain other than what doctors prescribe, but it may take some trial and error figuring out what is best for you. Most of us are not doctors so please speak to your physician BEFORE you try any suggested remedies for your pain. You may also want to look at the forums available through the American Diabetes Association.

Aug 12, 2018 · Tingling in arms and legs - will this get worse? Can I still function? in Neuropathy

@mary505

First, welcome to the forums. I am new to this myself and, in a short time, have found that the people here are very supportive, caring, and encouraging.

I am sorry to hear about what you're going (through). While I have no way of knowing what will happen regarding your condition, I do get a sense of how this is affecting you. I started to experience intermittent burning/tingling sensations in my feet last month. It negatively impacted my eating and sleeping. I was a mess. The mental battle was the worst part. I sought help from a therapist to deal with the worry/anxiety. Frankly, the worry physically and mentally drained me. I have, for the most part, reached a point where I have accepted the situation. The worry is still there and does affect me at times, but not as bad as it did 30 days ago.

You didn't mention how your experience is impacting your life other than physically. If you are dealing with issues regarding worry/anxiety or this is having a negative effect on your life in other areas I would highly suggest seeking help from a therapist or your doctor. It's not easy to wait to see a doctor, run the tests, get a diagnosis, and then see what can be done to resolve the problem (if possible). As Tom Petty sang, "The waiting is the hardest part." It's handling the time while waiting that can be very hard.

There is a member of the forum named John that I've found to be extremely helpful. He tells people to learn what they can about their condition and be their own advocate. I'm sorry if I wasn't helpful regarding your medical condition, but hope I was of some assistance if it's been bothering you in other ways.

Aug 12, 2018 · Seeking help, information, support... in Neuropathy

Thank you for the recommendation regarding the book. I will certainly check it out.

The burning/electrical sensations have returned and I've been dealing with it pretty well for the most part. When this hit last month I was not eating, having trouble sleeping, getting dry heaves, and an occasional crying fit. Frankly, I became physically and emotionally drained with putting myself through this. I have finally accepted the fact that I have to deal with it, be patient, and wait to see what the doctor(s) say(s). Sure, the anxiety still comes up at times, but I'm doing my best to control it.

This is a place I can come to and not drive myself crazy with what I read. I was doing all sorts of reading online about neuropathy and diabetes. Goodness. All the questions that kept coming into my mind:

1) Am I going to lose feeling in my feet?

2) Will I end up in a wheelchair?

3) Will I eventually not be able to walk?

4) Will this get worse?

5) Will I end up traveling to different doctors and hospitals around the country trying to get an answer? My doctors are part of the Cleveland Clinic so I hope not, but…

Truth is, nobody knows. I had to stop worrying about all the possibilities. The warning about Dr. Google was one that I did not heed.

I am appreciative of the feedback and support that I've received from everyone. I've been given some new things to try to deal with my worry. Thank you all!

Aug 11, 2018 · Seeking help, information, support... in Neuropathy

@arcticmark

"Zappers" is a great to describe what I experience. As I have mentioned, they went away for five days and have been back the last two days. I've accepted it and that has helped me a lot. 'Course my big worry is it getting worse or something new like numbness. My neuro told me none of his patients with SFN are in a wheelchair because that was a fear I mentioned when I saw him two weeks ago. I am going to try your approach with simply welcoming the pain that, thankfully, is very mild for now. I try not to think about if this will get worse or, if so, how bad it could get.

I really appreciate the feedback I am getting. The people here are helpful and encouraging. Thank you!