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Posts (9)

Aug 24, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@mopete your situation sounds a lot like my own and others. The bloodwork you’ve had done is good enough and proves the virus is active. Have they tried putting you on Valtrex? I’ve been on 500mg 2x/day for 10 yrs. in July a new pcp decided I shouldn’t take it and I proceeded to go back 10 yrs. I convinced him to put me back on 2 weeks ago and am back in business. Try and push your doc to put you on it. There’s plenty of literature.

Aug 11, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@mrmie ty!!! Also, if you read my other responses, I thought I was responding to you. I’m new to this forum and keep forgetting to put the @ symbol to respond.

Aug 11, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@uldiver ty so much for the great information. I will definitely check into it. Truthfully, for the most part since 2008, my health status has been kept in check w/Valtrex. However, I didn’t look further into other possibilities as I put the DX out of mind and just pushed forward. I’m in the healthcare field too! My heart goes out to all of the folks on here who are searching for answers and desperately needing relief. It’s an awful chronic condition. However, it can be managed as long as we have the right medical professionals who recognize this is a real problem and treat patients accordingly.

Aug 11, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@aesmayo01 I hope you’ll be able to get some answers and helps.

Aug 11, 2018 · Treatment for chronic epstein barr in Infectious Diseases

Ty you very much for the information! I’m so sorry you’re unable to exercise. When I’m feeling good, it’s a lifesaver. I feel better. I’m not sure if you’ve tried it, but I have a massage therapist who does lymph massage using the cupping technique. It truly helps with ridding your body of toxins. I try to go at least twice a month. It’s made a difference and has really helped with inflammation and swelling. I also do detox baths at home with ginger and epsom salt. I hope this helps.

Aug 10, 2018 · Treatment for chronic epstein barr in Infectious Diseases

Ty! I wasn’t familiar with those. The good news is I spoke at length with my PCP this morning and he listened to me! We discussed everything again and he has reordered the Valtrex. Thank God!!! He also said he is going to research more on EBV as he really didn’t know a lot about what’s out there to help.

Aug 9, 2018 · Treatment for chronic epstein barr in Infectious Diseases

I don’t mean to sound dumb but what are SEID/ME/CFS? I’ve contacted my previous rheumatologist as she is also a friend to let her know what’s going on and see if she can perhaps speak to my current PCP. Something has got to give.