I am so sorry you had to leave school because of your CG symptoms. Most western medicine doctors know very little about nutrition and diet but that is slowly changing for the better. They are good at many other things, such as diagnosing conditions and trauma care. Our gastroenterologist is a little a head of the game in nutrition. He thought it a good idea to go gluten free. Gluten and dairy are two of the most difficult foods to digest, so it made since to make it as easy for the stomach to process. The proton pump inhibitors, such as pantoprazole inhibits absorption some vital nutrients. That's why I worked with her doctor to gradually lower the dose. Here is some info from Life Extension Magazine in the next paragraph but you can research this on your own, and by all means, don't go off of it because of this information, it's just good to have information:
Role of Stomach Acid in Nutrient Absorption
Stomach acid plays an important role in the digestion of your food and nutrients. When the sphincter valve at the end of your esophagus fails to close properly, stomach contents including stomach acid leaks back up into the esophagus, damaging the delicate esophageal lining, causing heartburn. Drugs like Prilosec® inhibit the release of stomach acid and provide some relief. However, the continual reduction of stomach acid through medicines like proton pump inhibitors hinders digestion and absorption of key nutrients.9,10 This ultimately leads to deficiencies in key nutrients, such as vitamin B12, iron, calcium, magnesium, folic acid, and zinc.11 Due to the alteration in pH balance in your gut, the absorption of other nutrients is possibly at risk as well. Proton pump inhibitors not only block the release of stomach acid but also something else called “intrinsic factor,” making it impossible to absorb vitamin B12. The inhibition of dietary iron can contribute to anemia over a long period of time. It’s well known that calcium is best absorbed in the presence of acid.Proton pump inhibitors are thought to inhibit active transport of magnesium in the intestine, leading to deficiencies and potentially serious health outcomes. Your absorption of folic acid is inhibited, disrupting the production of new cells, which helps your body grow and repair itself. The absorption of zinc is impaired, which is needed for many enzyme reactions in the body. It is evident that the lack of stomach acid has far-reaching effects that extend well beyond the digestive system. You can offset these damaging effects by supplementing to provide some protection against these deficiencies. Consider talking to your doctor and at the very least take a blood test (Complete Blood Count, Comprehensive Metabolic Panel) to check for nutrient deficiencies.
Having reported all that, CG is such a mysterious condition, PPIs may just be necessary. My daughter is doing fine on 10 mg a day for now, which her doctor calls a "baby dose." She is currently flying back from a medical mission trip from Tanzania and says the prescription drug Zofran (Ondansetron) has been a life saver for nausea. (It's a drug usually prescribed for nausea from chemotherapy, so you know it's strong. We asked the doctor to prescribe it for her trip. It took a leap of faith for me to let her go on this trip. She also keeps Zofran on hand for school but doesn't need it often. Any kind of ginger candies are good, gin-gins, sugared dehydrated ginger, Trader Joe's has a selection. There are all kinds of alternative as well, supplements to sooth the stomach with declycerized licorice, slippery elm, etc. Tumeric supplements are wonderful for inflammation. Kombuch or KeVita probiotic drinks are really good. If you can learn to like it, fermented veggies like sauerkraut, not the kind on the unrefrigerated shelf at the grocery store which has been pasturized killing the good stuff, but the kind you make yourself or buy in the refrigerated section of Earth Fare, Whole Foods, or Fresh Market, it has live probitiocs in it. Anything good for the gut should help people with CG. Eliminating caffeine was a good move on your part.
What has really helped her is to know her body, develop a "tool box" for her health which you will have to custom make for yourself. Keep a journal of what you eat, do, and how you feel and adjust accordingly. I notice when she's not feeling well she goes for chicken bone broth (the boxed kind) and white rice. When she's home we watch fun videos, LOTR, Marvel movies, fun stuff. She doesn't have time to watch movies in school, too busy. There she listens to her favorite music, tries to keep her stress level down, which is hard in nursing school. She prays a lot and reads her Bible, that helps. And you are so right, experiences make us uniquely qualified for the plan God has laid out for us. You will be a wonderful nurse because of this, so compassionate, and that is of utmost importance. Praying for you, your health and your future.