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Sat, Sep 12 11:07am · Collagenous Gastritis in Digestive Health

Thank you, Anthony. Our health crisis has strengthened our faith and magnified our prayer lives. There are so many diseases out there with no known cause or cure. I stayed by my daughter's side all the times she spent in the hospital between the ages of 12 – 14, praying and researching, working with some of the best physicians in the country. I learned a few things. 1) This was for my daughter's good — because of CG, God put on her heart to become a medical person, now she's a senior nursing student with a 4.0 GPA with compassion for patients only a former patient could have, she may go on to become a nurse practitioner! 2) I saw children in the pediatric ward that would make your heart break, one with parents who turned parenting over to grandma and the nurses, never visiting their child. I also saw people of faith experience miracles only God could perform, blowing their doctor's minds. 3) God took care of me, too, sending the right people to comfort and educate me, even helped me find the best coffee in the hospital! My daughter is not out of the woods yet, but I know Who has her back, and over 500 miles away, I'm comforted that He transcends time and distance. God bless you, too!

Sat, Sep 12 9:38am · Collagenous Gastritis in Digestive Health

Hi, my daughter was diagnosed with CG when she was 12 years old. I know PPIs are not for long term use, but a little dose of 10 mg of Omeprazole has really helped her. She is 21 years old finishing college for nursing. She had a not-so-common symptom of hematemesis (stomach bleeds) which at times put her in the hospital requiring transfusions so she is on another drug for that called Lanreotide (Sandostatin) which is a monthly shot. However, she is trying to wean herself off of it spacing out the shots every 2 months. So far she has not had an issue (she does get warning signs). Sorry, your pain is so frequently. I think the PPIs have eliminated the pain for my daughter and she may have to be on it for the rest of her life. I've read to supplement with certain vitamins and minerals as PPIs prevent the absorption of certain nutrition. I believe it's B12, can't remember the rest, you can look it up, but she does take supplements. Hopes and prayers to all with this very frustrating condition. One. more thing, she gets car sick easily, so I used to let her sit up front (she's grown and has her own car now, but when she does ride with us I try to drive gently around curves, not stop abruptly. Hope this helps.

Fri, Jan 24 9:07am · Collagenous Gastritis in Digestive Health

Sure, I guess no news is good news. She is now a junior in nursing college working on her bachelor's degree. She is doing very well, but as a mother, I think she is too thin, 5'7" about 103 lbs, but it doesn't slow her down. She's maintaining a 3.9 GPA and has a serious boyfriend. She is also trying to get off the Lanreotide shots by spacing out the doses. I'd prefer she do that when she's home in the summer but it's her decision. She tried to get off the "baby" dose of 10 mg Omeprazole but it caused her severe stomach pain, so she stays on that. I just pray for her every day. Thanks for asking. How is your daughter doing?

Fri, Jan 24 5:33am · Collagenous Gastritis in Digestive Health

One more thing … there's a Facebook page for CG which offers a plethora of good information from parents and patients about what they've tried and what has helped. It has provided a great deal of hope to all with CG and parents alike.

Fri, Jan 24 5:29am · Collagenous Gastritis in Digestive Health

which successfully stopped the bleeding. It's an injection given in the glutes every month. She is now a 20-year-old nursing student junior in college and doing well. She is experimenting with spacing out her injections every 8 weeks instead of 4 which bumps up my prayer life, but she feels it's something she needs to do. Looking back, the stress in her life (she is a perfectionist) seems to have played a role in her symptoms. She has given up gluten/wheat which also has seemed to help. She also takes 10 mg of Omeprazole every day, bumping up the dose if she experiences any pain. As far as alternatives, the homeopathic drug, Arnica Montana 30C, has works wonders when symptoms flare up, especially if she senses a bleed coming on. We are blessed that she gets warning signs like mid back pain and stomach pain unlike anything else. I've forwarded your plea for help to her, hopefully she'll have time to respond but she is really busy with school. Things I've done to help her 1) make her favorite comfort foods, white rice and chicken thighs (high fat to help her gain weight). Let her drive or sit in the front seat of the car as she tends to get motion sickness more easily than others, 3) Try to keep a positive peaceful atmosphere in the house, especially at mealtimes. 4) Do fun things, 5) last but not least, pray. Hope this helps. Emelia

Fri, Jan 24 5:18am · Collagenous Gastritis in Digestive Health

Hi Andrew. My heart and prayers go out to you and your daughter. My daughter was diagnosed when she was 12 years old with a massive stomach bleed which happened six more times between the ages of 14 and 15, requiring multiple blood transfusions. She was put on the drug, Lanreotide (SANDOSTATIN)

Mon, Jan 6 3:41pm · Collagenous Gastritis in Digestive Health

Thank you. Praying for all of you with CG. There are worse things to battle, but this is by no means a picnic. Thankful for the prayers of many.

Mon, Jan 6 5:59am · Collagenous Gastritis in Digestive Health

Are you connected to the collagenous gastritis discussion group on Facebook? Lots of good info there. My daughter has CG. She's 20 years old and a Junior in college, doing well. She has changed her diet (no gluten) and takes a low dose of omeprazole (10 mg). When her stomach doesn't "feel right," she takes Arnica Montana, 30C homeopathic drug. It seems to help keep blood where it belongs. (Maybe a placebo affected but it has worked last two times she suspected a bleed while in college. She spent many days in the hospital with transfusions when she was 14 and 15 years old. Stress management also seems to help. Hope this helps.