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Posts (41)

Wed, May 15 10:28pm · Optic Nerve Meningioma patients in Brain Tumor

My depth perception is bad as well. My neurosurgeon told me if my remaining tumor starts growing that I will have to do radiation. I go back in September for another MRI and checkup.

Sat, May 11 2:56pm · Optic Nerve Meningioma patients in Brain Tumor

I close my left eye too quite often. My neurosurgeon stopped my surgery before I was blind that day, but I almost think it would have been better to be completely blind all the sudden instead of losing vision slowly.

Sat, May 11 9:30am · Optic Nerve Meningioma patients in Brain Tumor

I'm also having hand tremors since the surgery, so with those combined with vision loss there is no way I can do nails. It's so frustrating. Does the dr say if your vision will improve? My neurosurgeon says I will be completely blind in my left eye eventually. The remaining part of my tumor is still wrapped around my optic nerve and there is no way to remove it. He tried to remove as much of the tumor during surgery but the risks were to great to continue. I have brain MRI's every 6 months to monitor it.

Thu, May 9 7:58pm · Optic Nerve Meningioma patients in Brain Tumor

I hate to hear you are going through the same thing but it does help me to know that I'm not alone. I was a nail Technician and can't see well enough to do nails anymore. I completely understand the "new" normal. I live one day at a time and do the best I can to try and stay positive.

Thu, May 9 5:35pm · Optic Nerve Meningioma patients in Brain Tumor

I had my surgery in Columbia, South Carolina and had a great team of doctors. The vision loss is my main obstacle. I also have trouble trying to hold conversation. It's like I know what I want to say but it doesn't come out right. I have to concentrate on trying to say what I'm thinking. I still have some dizziness but not as bad as it was. I guess I just don't feel like I'm the person I used to be if that makes sense.

Wed, May 8 6:02pm · Optic Nerve Meningioma patients in Brain Tumor

I know how you feel. My tumor is wrapped around my left optic nerve also. I have lost most vision in my left eye and eventually will be blind in that eye. I had 85% of the tumor removed August 2018. Dr is continuing to monitor the remaining tumor. I get so frustrated with how this has changed my life completely, don't get me wrong, I am thankful I am still here but I feel worthless now. I no longer can work and don't understand why God didn't go ahead and take me. I'm so sorry you are going through this too. Let me know if I can help in any way. I'm here to listen.
Mandy Rector

Fri, Mar 15 7:53pm · Left Anterior Clinoid Meningioma Surgery in Brain Tumor

I had to persist with eye Dr's. I finally saw a retnia specialist and he sent me for the MRI. My tumor is also wrapped around my carotid artery. I wish you all the best

Fri, Mar 15 7:14pm · Left Anterior Clinoid Meningioma Surgery in Brain Tumor

I started losing peripheral vision in my left eye. Eye Dr thought it was glaucoma but I kept losing vision too quickly. Finally had an MRI of my brain and they found the tumor. The tumor is wrapped around my optic nerve so I will eventually be blind in that eye.