I had to persist with eye Dr's. I finally saw a retnia specialist and he sent me for the MRI. My tumor is also wrapped around my carotid artery. I wish you all the best
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I started losing peripheral vision in my left eye. Eye Dr thought it was glaucoma but I kept losing vision too quickly. Finally had an MRI of my brain and they found the tumor. The tumor is wrapped around my optic nerve so I will eventually be blind in that eye.
I had my surgery in Columbia, SC at Palmetto Health Richland. I didn't have a choice with surgery. My tumor was bigger and had to be removed, at least as much as could be gotten. I don't regret having the surgery at all. It's been life changing as far as my vision loss but as long as I know what to expect I can deal with it. I go every 6 months for MRI and checkups to make sure it's not growing. I was told I will have Gamma Knife radiation if it grows. I wish you all the best and I'm here if you need to talk.
Welcome to the group. I'm so sorry you are going through this. I had a meningeoma on my optic nerve and carotid artery. I had 85% of it removed on August 28th 2018. Mine was found also due to vision loss in my left eye. My surgery lasted ten hours. I was in the hospital four days after surgery and so far I don't have any complications.I have lost most of my vision in my left eye now but my neurosurgeon said that is expected and I will eventually lose all of the vision in that eye. My tumor is not growing as of my 6 month check-up, but he will monitor it every 6 months with MRI. If it starts growing he will do radiation. I will try to answer any questions you may have as well as others on here that have been through this. My prayers are with you. Take care
@kmart I haven't heard of PLEDS. I'll have to research it. I'm so sorry you are going through all this. I'm praying you don't have anymore complications. Hopefully someone will see this post and be able to help you more. Just please keep me posted on how you are doing and I will try to help in anyway I can.
You're welcome. I'm going through the same thing with my back. I just had 4th spinal injection today, first 3 didn't work. Dr's don't seem to take us seriously anymore. We have to be persistent to get answers. You know your body better than anyone so I would definitely get a second opinion.