Badges (1)


Member has chosen to not make this information public.

Posts (19)

Sun, Jan 5 7:53am · Decreased sense of smell may indicate early dementia in Brain & Nervous System

The first symptom my mother had was loss of smell…about one year before and she complained about it constantly!

Dec 5, 2019 · Life after Brain surgery in Brain Tumor

I think starting a thread about the late effects of chemo/radiation would be beneficial, along with ways to cope.

Oct 14, 2019 · CRPS in Chronic Pain

You hit the nail on the head!

May 8, 2019 · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Thanks for your response. I also have to ingest a lot of protein each day as an athlete. Have been relying on commercial protein shakes, eggs, fish, cheese, chicken, peanut butter. Where do you get your beef protein shakes?

Apr 24, 2019 · Heartburn in Digestive Health

Can I ask, who did your digestive surgery?

Apr 17, 2019 · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

This is the best advice I've found after numerous visits to gastroenterologist, including Mayo. Mayo diagnosed me with SIBO twice. Two unsuccessful 2 week rounds of xifaxan. After extensive testing with no definitive answers for multiple gastro/neurological problems, I continue to have symptoms of IBS and SIBO. Nutrition was never raised. I've lost confidence in traditional medicine and have discovered through trial and error that I must follow the diet you describe. After being passed around to untold specialists, I feel like I've been dropped like a hot potato. Every time I see a Mayo TV ad, I cringe.

Jan 18, 2019 · Thymic Tumors in Cancer

Hi Teresa, I am a ten year survivor of another rare cancer, high grade undifferentiated plemorphic uterine sarcoma. I received surgery, chemo and radiation at diagnosis. All was fine for 6 years, then started losing weight, developed GI issues, then diplopia, nystagmus, followed by peripheral neuropathy and ataxia. I have had an exhaustive work up at Mayo, not surprisingly looking for cancer. I think Gastroenterology, Oncology and Neurology are at a loss to explain. Striational muscle antibodies, which can be linked to thymus cancer, showed up on paraneoplastic bloodwork, but neurologist thinks this is age related. As my symptoms continue, along with intense hunger if I don't eat every few hours, constant thirst, profuse sweating and flushing on exertion, and going from cold to hot in seconds, I'm wondering if I should be evaluated by a NET specialist? I would appreciate the name of the specialist you are seeing in Michigan.

Jan 10, 2019 · NET - Insulinoma in Neuroendocrine Tumors (NETs)

Thanks Teresa. Yes, my issues worsen if I'm tired or under stress. I'll keep you posted.