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Wed, May 8 6:44am · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Thanks for your response. I also have to ingest a lot of protein each day as an athlete. Have been relying on commercial protein shakes, eggs, fish, cheese, chicken, peanut butter. Where do you get your beef protein shakes?

Wed, Apr 24 6:17am · Heartburn in Digestive Health

Can I ask, who did your digestive surgery?

Wed, Apr 17 5:54am · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

This is the best advice I've found after numerous visits to gastroenterologist, including Mayo. Mayo diagnosed me with SIBO twice. Two unsuccessful 2 week rounds of xifaxan. After extensive testing with no definitive answers for multiple gastro/neurological problems, I continue to have symptoms of IBS and SIBO. Nutrition was never raised. I've lost confidence in traditional medicine and have discovered through trial and error that I must follow the diet you describe. After being passed around to untold specialists, I feel like I've been dropped like a hot potato. Every time I see a Mayo TV ad, I cringe.

Fri, Jan 18 6:54am · Thymic Tumors in Cancer

Hi Teresa, I am a ten year survivor of another rare cancer, high grade undifferentiated plemorphic uterine sarcoma. I received surgery, chemo and radiation at diagnosis. All was fine for 6 years, then started losing weight, developed GI issues, then diplopia, nystagmus, followed by peripheral neuropathy and ataxia. I have had an exhaustive work up at Mayo, not surprisingly looking for cancer. I think Gastroenterology, Oncology and Neurology are at a loss to explain. Striational muscle antibodies, which can be linked to thymus cancer, showed up on paraneoplastic bloodwork, but neurologist thinks this is age related. As my symptoms continue, along with intense hunger if I don't eat every few hours, constant thirst, profuse sweating and flushing on exertion, and going from cold to hot in seconds, I'm wondering if I should be evaluated by a NET specialist? I would appreciate the name of the specialist you are seeing in Michigan.

Thu, Jan 10 7:34am · NET - Insulinoma in Neuroendocrine Tumors (NETs)

Thanks Teresa. Yes, my issues worsen if I'm tired or under stress. I'll keep you posted.

Wed, Jan 9 7:20am · NET - Insulinoma in Neuroendocrine Tumors (NETs)

I will post as I learn more, hopefully. I am waiting for a phone Consult from the Mayo neurologist I saw last month. Some question whether this is inherited spinocerebellar ataxia after seeing local movement disorder specialist and Mayo neuropthamalogist. However, as my symptoms fluctuate by time of day, I started to wonder if my system was being affected by hormones or other chemicals, especially in the morning.

I had a sigmoidoscopy and endoscopy a year and a half ago at Mayo with nothing found. I will ask the Mayo neurologist if an endocrinology referral Is in order. Thanks.

Wed, Jan 9 6:47am · Fructose Malabsorption in Digestive Health

Like you, I don't mean to say pelvic therapy can't be very helpful. I started with myofascial,release, which did help reduce the constriction or adhesions from multiple surgeries . I then began pelvic floor therapy, which showed I had a tight pelvic floor. This included biofeedback to help relearn how to relax/contract the pelvic floor muscles. All 3 of the physical therapists I saw were very knowledgeable and caring. However, for some reason I was experiencing more GI issues near the end of treatment, which may be totally unrelated to the treatment received. I want to stress that physical therapy can be a very valuable treatment approach.

Tue, Jan 8 9:18am · NET - Insulinoma in Neuroendocrine Tumors (NETs)

I'm throwing this out there because I'm wondering if my problems may be due to a neuroendocrine tumor. Had intensive radiation and chemo for cancer 9 years ago. All was fine until 3 years ago when I lost 50 pounds, developed GI issues, then double vision, nystagmus,then balance problems. Exhaustive work ups at Mayo with no malignancy found on imaging or bloodwork. Continue to battle to keep my weight stable-sudden extreme hunger every few hours with anxiety, worsening balance and eye problems if I don't eat. Thirsty and drink water continually.