About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (5)

Aug 7, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

she has joined this group, thanks for the info!

Aug 7, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

we are still trying to figure out what triggers she has, for sure it seems stress! whenever she gets worked up it gets worse. we are still trying to find doctors in our area.

Aug 6, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi @pcfromfm, thank you and my wife has been in touch with a lady that runs a FB page but has yet to connect. I wonder if this is the same one? She is constantly feeling sick, cramping/ bloating, and tightness. It was discovered through an MRI and CT. I wish I could do more for her but I feel helpless!

Aug 6, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Lisa, thank you for the welcome! We are currently putting together a package to send to Mayo. She is most bothered by the “sick feeling” , and the cramping/ bloating . She says that the pain is not terrible it’s just non stop now for 7 months! She is on budesonide right now but we haven’t noticed a difference in her condition. Also a follow up MRI showed no significant changes.

Aug 5, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

My wife was diagnosed with messenteric penniculitis a few months ago. We live in the Chicago area and are wondering if anyone can recommend a doctor in our area? Her GI doctor is unfamiliar with the condition and dosent really know what to do. We are in the process of researching doctors but as a lot of you probably already know not many doctors can help with this disease! Hope to hear from someone soon ,thanks!