do you have some thoughts on immunotherapy options for a PXA tumor with features of an anaplastic astrocytoma?
our oncologist wants to switch over to a BRaf inhibitor. two other patients with this same, unusual tumor have had success switching to a combination of two bRaf inhibitors. but we know that there are serious side effects, so we're holding off as long as humanly possible. we also know that is the only other option we have from Penn.
Over a 10-year battle with this cancer. Many operations and chemo treatments due to multiple resurgences. virtually maxed out on lifetime radiation treatments.