About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (10)

Mon, May 13 12:06pm · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Danielle, pasé por la pérdida de mi hijo hace ahora tres años. Comprendo perfectamente lo que dices. Nosotros estuvimos en un grupo de duelo y fue de gran ayuda. Yo también me sentí muy culpable de no haber podido hacer que mi hijo sobreviviera. Con el tiempo me he ido liberando de la culpa y ahora me queda un hermoso recuerdo de mi hijo, de lo vivido, siempre lo siento cerca, aunque a veces siento punzadas de dolor. Deja que te llegue su fuerza y que te acompañe en este camino que recorrerás. Un abrazo.
Danielle, I went through the loss of my son three years ago now. I understand perfectly what you say. We were in a grieving group and it was very helpful. I also felt very guilty about not being able to make my son survive. Over time I have been free of guilt and now I have a beautiful memory of my son, of what I have lived, I always feel close, although sometimes I feel pangs of pain. Let your strength reach you and accompany you on this path you will travel. A hug.

Sun, May 5 4:57am · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

I'm sorry about what happened … My son died in 2016 from the same tumor, but not in all cases the same thing happens. There are patients with a very good prognosis. Since 2012 I have a blog where I publish information about this tumor. https://xantoastrocitoma.blogspot.com/

Nov 24, 2018 · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Also about dabrafenib and vemurafenib

Nov 24, 2018 · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Bevacizumab, irinotecan, temozolomide, tyrosine kinase inhibition, and MEK inhibition are effective against pleomorphic xanthoastrocytoma regardless of V600E status… You should investigate about these treatments.
Hope everything goes well

Nov 2, 2018 · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Good Morning.
I would like to show in my blog of xanthoastrocytoma information about this chat.
You give me permission for it?
Thank you.
Javier Hortal

Aug 5, 2018 · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Hi. I hope your daughter overcomes the tumor. Today there are great advances with the new treatments. In the blog of xantoastrocitoma you can find various information.
I wish the best for you

Aug 4, 2018 · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Thanks for your words. We're on touch.
Any information about advances in the treatment or research of xanthoasyrocytoma interests me.
A greeting.

Aug 3, 2018 · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

Hola daniellemarie. Te escribo wn español. Veo ahora este post del año pasado. En el blog que modero he reflejado información sobre el tumor. Quimio como la temodozolamida o clinicals trials de braf (dabrafenib, vemurafenib) junto con otros inhibidores podrían ser efectivos…
El blog del xantoastrocitoma.