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Posts (39)

Tue, Jan 7 11:27pm · Thoracic aortic aneurysm in Aortic Aneurysms

Hi , I’m also young at 49 diagnosed at 48 with TAA at 4.3. And bicuspid valve with mild regurgitation. Also the only one in my family. I’m active as well. Based on my height and weight they tell me small and probably decades away or ever and less then 1 % chance of anything currently happening. I can’t know what will happen but try to stay positive but think about it still too much. If needed I will have to have open chest and valve replacement – (sure same choices as you) and aneurysm repair. Told 98-99% success at my current fitness level. I don’t have high blood pressure and don’t have any related symptoms. Supplements I used to take gave me palpitations so no more of that. I go in annually for monitoring. I hope for the best for us all and my family.

Jun 26, 2019 · Thoracic aortic aneurysm in Aortic Aneurysms

Recently found out mine was caused by bicuspid too , what symptoms did you have – mine has been life long on and off palpitations- random

Jun 18, 2019 · Thoracic aortic aneurysm in Aortic Aneurysms

Just wanted to say thank you so much for your support inspiration and kindness . He told me could be decades if ever since small and stable. No treatment given yet and tbd in another year when I see him. Hope I have the strength to wait that long even though I feel good. Hope your doing well too.

Jun 11, 2019 · Thoracic aortic aneurysm in Aortic Aneurysms

Hi just had year appointment and found out stable and mild and that it’s a bicuspid valve. I’m surprised Kaiser didn’t catch it. Hope your well.

May 15, 2019 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Hi feel down too and try to keep my self up- I’m 48 and felt palpitations on and off since I was 8. I have 2 daughters 3 and 5. A 4.3 aneurysm was found incidentally 6/2018. Been depressed and scared since. I just wanted to share all the positive notes I have been taking to help make my self feel better which sometimes helps:
I wil be fine
no treatment needed
try not to worry about it
based on size – not dangerous – may never grow larger- keep bp low as it is-mine small-enlarged will be fixed if ever grows-routine
no treatment needed-no surgercal indication now or ever only requires observation
no limitations other than bench/heavy weights
can live entire lives with this size and nothing happening
treatable when small – repairable when larger – there is a fix – monitored – most important.
too small – not a prob
many years checking – not now
keep fit
live and let live
keep up w apts
listen to dr's
repair rate high ie 98% – Full Recovery – Excellent They do millions of these
prob- 10 years – maybe more or ever- out repair – maybe new meds or non/minimaly-invasive fix's
stop thinking about it Dont do this to myself
file under all other worries u dont think of.

STAY POSITIVE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Apr 30, 2019 · Video Q&A about Thoracic Aortic Aneurysms in Heart & Blood Health

Oh and is that threshold 2% for everyone?

Apr 30, 2019 · Video Q&A about Thoracic Aortic Aneurysms in Heart & Blood Health

Or answer new questions like how long have you seen a patient’s aneurysm remain small without growth thus not ever requiring surgery or being at threshold risk.