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Posts (39)

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

In trying real hard to be positive – I heard over all if otherwise healthy the repair rate is excellent like 98-99 %. Scared too that bad things can happen but is that unlikely? Also out of curiosity what’s the longest that anyone here has gone without growth? Also I read of Cleveland clinics site that they successfully do about 500 a year and only consider it to be an aneurysm if over 5 or repair ready based on personal factors. Last question is are any incidental findings – meaning no known risk factors – were any medications or supplements taken that could have caused this- one area where I struggle – will do genetic testing for my family. Like I said trying to be positive.. btw 4.3-4 and 48. Feeling great physically- feels like bs. Best of luck to us all

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

Also heard very important to find best surgeons who do repairs routinely – my research shows Mayo Clinic , cleaveland clinic and cedars Sinai – see others too – local to me but will have to decide when and if the tine comes. Was told may never have to. Hope your friend ends up fully recovering

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

Out of curiosity was it helpful to meet with the surgeon even though not needed now or possibly ever. Thought it may be to gain confidence in the fix if needed. Thanks

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

Thank you all a struggle for me too. 48 with 2 babies. 4.4 – can’t think of black robe.

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

Sorry or 4.3 and not high BP – incidental

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

All not alone – in my case I’m 47 with a 3 and 5 year old . I have a 4.4 TAA with no reasonable cause that 3 dr’s can find . I fear self inflicted with blood flow supplements though told unrelated. I am devastated and petrified. All tell me monitoring and will only repair if 5-5.5 and to carry on but struggle especially when looking into my beautiful families eye’s.

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

I thank you all so much for your wonderful support and kind words, I support you all too. TBD on the growth as stable actually lower reading from June to September so think won’t have another until June next year but maybe sooner if I can get it. Switching from Kaiser to Blue so I can choose. Working on living without the fear. Been told by cedars and mayo that since monitored and can be repaired if needed at 98-99% that we should be fine and that risk is like or better than anything else we do. Best to all

Fri, Jan 24 9:09pm · Ascending Aortic Dilation - Ascending Aortic Aneurysm in Aortic Aneurysms

No, just on and over the years : Prostate and varility
Arginmax
Nugenix multivitamin
Saw palmetto
Vitamin D
Fish oil
Citruline

Excedrin
Aspirin
Melatonin

Then stopping after palpitations