Interesting… maybe I'm over filling the tank. I don't seem to see the water level go down by very much… maybe my humidity setting is too low – guess I'll decrease the amount I'm putting in so I don't waste so much!
Member has chosen to not make this information public.
Member not yet following any Pages.
Hello CPAP Friends,
Cleaning every day, all of the components seems like the best practice to me… so far it's about a 5 minute morning task. I guess I'd rather side with OVER cleaning than not cleaning enough. I don't have a heated hose, so I submerge my whole hose in the sink daily… with soapy water… then rinse and hang. I take everything apart (remove straps, and pads), remove the mask from the frame, remove the swivel from the top of the mask) – wash all those parts with soapy water, rinse and set to dry.
I do agree that changing the distilled water container daily seems like over kill… but when I let it sit in the machine, I see condensation in the machine – I don't like that! Moist areas are a breeding ground for bacteria – so every day the distilled water is changed and the tank cleaned. I leave the machine open so it can dry out during the day. One other trick I've been using is that in the evening when I connect everything back up I let it run for a few minutes before putting it on my face. My idea was that any left over moisture in the tube, frame or mask would be evaporated. So far so good!
I'm pretty new at this too… about a month+ in. I started out with a full face mask (pillows under nose but also covered my mouth). That worked 'pretty well' but I decided to switch to the pillow style where the mouth isn't covered. I too experience what you are talking about when you open your mouth the air rushes out… very strange sensation… basically your mouth has become part of the whole pressurized system… so opening your mouth becomes a 'leak'.
I like the nasal pillows much more than the full face. Do you use the type that has the tubes that insert into your nose a bit? I haven't tried those – but I'm thinking about it. I really like the Respironics brand of masks because they allow you to switch out the mask type while keeping all the same head gear (almost all the same)… maybe other brands do that too, but it seems great for new users because you can easily try the other types of masks and find what works best for you. Also… the swivel on the top of the head works great – I have no troubles with the hose at all.
I'm a little confused about the nasal pillows pulling out when you stand up… I always take the mask off while I'm still in the bed. Not sure why you would standup while still connected? As long as the pillow isn't pulled off while your in bed I wouldn't worry about it. I do find that during the night I sometimes adjust the straps… usually just by pulling is down in the back which tightens things back up… I don't adjust the velcro – just pull the strap back down into position. I did find that my hair was making me crazy with all the straps etc. Finally decided to just pull into a short little pony tail – keeps most of it up out of the way and keeping straps tight seems to be working better!!
Hope that helps… JJ
Update: I had the 2nd steroid injection in my hand 1 week ago. This 2nd shot was NOT nearly as painful as the first (I think because it was less swollen so there was more room for the extra fluid). As of 3 days ago, I am ABLE to make a tight fist now! The tendons are still tight – but less painful than before. I keep opening and closing all day long… so excited to be able to! I will continue with the gabapentin for now… maybe if all is still good with the hand in a couple of weeks I'll start another attempt to get weaned off the drugs! 2018 has NOT been a great year for me… excited to keep getting better and hoping for a much better 2019! So… the take away from this is… if you have the fixed finger issues due to PTS… make SURE you go and see a HAND specialist. Tell them to consider that this may be tendonitis caused by the swelling in your hand. I'm so pleased with my outcome at this point… I want that for everyone else suffering out there!!! Merry Christmas!! JJ
Thanks for your response… however, I can't access the link you inserted? I get "403 – Forbidden: Access is denied. You do not have permission to view this directory or page using the credentials you supplied." I'm logged in as me… so not sure why?
I'm wondering if anyone else has dreams about drowning due to sleep apnea? These dreams are part of the reason I went ahead and starting CPAP usage. After 2 weeks on the machine I skipped one night and had that same horrible dream… I'm jumping into the water, I'm under the water and desperately trying to get to the surface… my lungs are screaming for air… I can't make it to the surface but I have to breath and take in a huge breath… that's when I wake up in a terrified state… anyone else experience something like this??