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Jul 26, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

Oh- I live within 45 minutes of her.

Jul 26, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

No , there is no Mayo clinic in our state . We have a hospital system with a very good reputation about 1.5 hrs away which I encouraged her to transfer to early on and their transplant team is very organized and coordinated with all the specialties. I know she'll have up and down days, I just wish they would at least talk to her about living donor options , which they haven't yet. Thank-you for your replies and encouragement .

Jul 25, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

Hi,
I have a very close friend of 30 some odd years who is waiting for a liver transplant and has sarcoidosis . She has been bravely handling all the associated hospitalizations, setbacks, kidney stones and infections, now bile duct stones and some heart and lung deterioration though she is not on oxygen yet. I fear that she is ready to give up and even worse that her medical team is planning to take her off the list. She has been on the list for 3 years and suffering with other health problems much longer. From day 1 many people in her life offered to get tested for the living donor program but her medical team initially told her that was not an option. She has a great husband and family who are very supportive and she also has a disabled son who loves and depends on her- so she has a lot to live for! I know she is going through something I can never truly understand but I'm not ready to give up! How can I support and encourage her to keep trying and maybe even try a different medical facility while still respecting her decisions?