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Aug 9, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert Can you tell me what the the wholefood diet entails?

Aug 3, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I started on the Big 3 about three weeks ago and am actually doing better than I expected. Fatigue, nausea and headaches are my worst side effects. Can anyone advise when the headaches go away? Also, how would I go about finding a support group in New Jersey or even NYC? Thanks in advance for any advice.

Jul 25, 2018 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

I do wonder about that but I hate to think that my beloved garden harmed me! My doctors think I've had this for a long time. I've traveled a lot around the world and lived in Asia too which is where I first was diagnosed with asthma. The air quality is horrible and I did drink the water. No regrets though, it was an amazing experience to work there. I have never smoked, exercise and eat healthy food. I considered myself healthy until my recent diagnosis. One of my doctors said I easily could have picked it up right here at home from the water and another said I probably picked it up overseas. I know it doesn't matter but like you, I do wonder.

Jul 25, 2018 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

@jkiemen I have MAI and from looking at my CT scan, my lungs are in bad shape. If I just had scaring, my ID Dr would have recommended every other day but I need to take the Big 3 every day. From what I understand, these meds take time to work. I think 3 years sounds like such a long time but it's inspiring to read when people in this group get to come off their meds.

Jul 25, 2018 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

@windwalker My name is Kris, thanks for your reply. I am just wrapping my head around being diagnosed with this disease. There is so much to learn plus it is very abrupt to change my entire routine. I started on the Big 3 last week and am looking at 3 years on the meds so I am definitely new to this all. I'm certainly glad to have found this group.

Jul 20, 2018 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

@windwalker, Thank you for posting the article. I am new to this forum and am finding it incredibly helpful. I was just recently diagnosed with Bronchietasis and MAC and have so many questions. When brushing my teeth, should I be using sterilized water?