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Mon, Oct 7 5:31pm · UCTD in Autoimmune Diseases

I exercise daily; walk daily; line dance. at a senior center 2-3 times/week unless I'm hit with a bout of fatigue. I am not depressed. I cannot take antidepressants. While still working, my primary gave me a Ritalin generic (5 mg.) which I only used "on occasion" for my ADHD, but saidg he wouldn't give it to me after I retired. I only took the pills "on occasion." I can literally have an espresso (or two or three) and go right to sleep. The Ritalin generic simply helped me get through my last years of teaching (again, I only took the pills "on occasion;" never wanted to become "dependent"). I realize the stigma due to the a abuse of this controlled substance, but despite my daily exercise routines (done religiously), line dancing, gardening, dog walking and the usual, day-to-day "to-do's," when fatigue hits me I can sleep 12 hours and still get up tired.

Mon, Oct 7 4:15pm · UCTD in Autoimmune Diseases

Just wonder why Provigil couldn't be prescribed to use "on occasion" for bouts of extreme fatigue associated with UCTD. There is such a stigma attached to usage.

Fri, Jun 7 12:34pm · UCTD, low MCV, low MCH and low neutrophils in Autoimmune Diseases

Thank you, Dr. Goldstein, for your very helpful explanation regarding the vagaries of UCTD. Although I consider myself very grateful for such a non-threatening "disorder" (my blood results indicated that I have 3 out of the 4 markers for Lupus), I can't help wondering if there is something to counteract the chronic fatigue that accompanies the disorder. Having been put on Hydroxychloroquine, any pain that arise can be easily eliminated with Advil, Alive or Aspirin (and for that I am truly grateful). I'm 72; normally active (exercise religiously) but no matter how much sleep I get, I am chronically tired. Is it unrealistic to think that there may be something to help with this in an effort to experience "quality of life?" I've heard all the "caveats" (Are you depressed?). If I am, I certainly don't know about it (72; retired; love to go line dancing at a Senior Center here in Tulsa; just had a dog certified as as "Therapy Dog;" love being retired). Is fatigue just "part of the package" for which there is no remedy? In other words, be grateful that's all I have to deal with? It's enough to tempt one into getting some pep pills "off the street" in order to enjoy what's left of life on Planet Earth! (that's a hyperbolic comment, but don't think it hasn't crossed my mind). I'm sending this in case others have felt likewise (and wonder if I'm just lacking in the "grit" to wade through the fatigue). Thanks in advance for your perspective in this matter.

Sat, Apr 20 12:14pm · UCTD in Autoimmune Diseases

Hang in there and I hope you can get off the steroids. So far, my hydroxychloroquine keeps my flare-ups "mild" (before I got on this, the pain was quite severe).

Sat, Apr 13 6:21pm · UCTD in Autoimmune Diseases

I have been on hydroxychloroquine for approximately 8 months and it really helps. Had painful flare-ups prior to taking the drug (the locations varied; hands; wrists; collar bone; neck). No need for steroids since taking the hydroxychloroquine; just Advil or Aleve on days I can tell my immune system is trying to give me a flare-up. I guess I'm grateful that this is a pretty mild diagnosis to have at age 72 (compared with more serious illnesses). I'm active; exercise regularly; only drink "on occasion;" basically grateful that I'm in as good a shape as I am. Just wonder if anyone else has days when it's really hard to get up without an inordinate amount of sleep? Once in an "upright position," I'm rather hyperactive. That being said, there are days when I almost feel "drugged."

Sat, Apr 13 6:14pm · UCTD in Autoimmune Diseases

Thanks!

Mon, Apr 8 5:36pm · UCTD in Autoimmune Diseases

I have UCTD and have been taking hydroxychloriquine for approximately 9 months. I really can't complain; the drug has prevented me from getting flare-ups which were extremely painful. So far, so good! I only need an Advil or Over-the-Counter pain pill for mild discomfort wherever it hits (have had flare-ups in my hands, wrists, neck, sternum). I'm 72; active, but my biggest aggravation is fatigue. I wish there was a pep pill for that (but would rather deal with constantly feeling tired than taking steroids). Most physicians will suspect depression (and I"m not depressed). I sleep more than most, but can resume my 90-mile per hour pace once I'm in an, "upright position." Hope this helps.