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Posts (59)

6 days ago · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

Hello, I'm new to this group. Over the years my PSA kept climbing. When it got to more than 5 my PCP sent me to a urologist. he was not alarmed and said he'd see me in a year. When that next time to see him came, I switched urologists. By then the PSA was 6.2. The new urologist immediately gave me a blood test for the probability of cancer. It came back as a 65% chance. Then I had the biopsy and 7 of 12 samples were cancerous with a Gleason score of 7 (3+4), advanced intermediate cancer. I opted for CyberKnife radiation at the SE GA Health System. I had 5-35 minute treatments, starting on Monday and ending that Friday. @ yr. 2, PSA 0.2; 3 yr. 0.2. I'm discharged with 1yr. telephone follow-up and yearly PSAs. I have 0 after-effects, as if I never had cancer and never had treatments. We now have a new CyberKnife "machine" that is even more precise and powerful. Today I'd have 4-5 25-minute treatments instead.

Sun, Mar 1 2:34pm · Stim wave procedure for chronic abdominal pain in Chronic Pain

@quark My Nevro HF10 is also MRI compatible but that's not as simple as it sounds. First I must have my 16 electrodes tested for electrical resistance. That requires a short test with the Nevro rep (when she's in town). Then she certifies that I'm OK for an MRI. But, neither the local hospital system nor local imaging centers will give me an MRI if I have an SCS, so I have to travel 1 hr. north to one that will, in Savannah. There I present my certificate and turn off my SCS before entering the room with the MRI. After that, it's business as usual. It's not the product that's the problem but the knowledge of SCSs by the people running the centers.

Sat, Feb 8 10:04pm · CRPS and Nevro SCS in Chronic Pain

@gracie2018 If you look back from posts starting a year or so and before that there is a lot of info for you on the Nevro SCS

Fri, Jan 3 2:23pm · Does Back Pain ever Get Better? in Chronic Pain

@ashby1947 Very sorry to hear about your back pain. Mine changed to 0 when I got a new air-cushion mattress/bed 15 years ago (won't give the brand). Years later some of the old problems came back but not related to a bad mattress. A back-torqueing golf swing brought back my problems and new ones. Eventually, a spinal cord stimulator, monthly chiropractic adjustment of my sacrum, and hydrocodone as needed and I'm totally pain-free 29 days a month. It may sound drastic but a life without pain is worth the effort.

Dec 30, 2019 · Has anyone one tried the HF10 Spinal Cord Stimulation Device? in Chronic Pain

@jujumars Good luck with your trial. Ask the Nevro rep about the battery life! I have a battery that is the generation older than yours will be. A friend and I had the Nevro implanted the same day less than 2 1/2 yr. ago. He already had to replace his battery. Mine takes twice as long, if not more, to charge than it did when first implanted. For example, I charged it about 14 hours ago and just checked it and it's more than half depleted. I fear I'll need surgery in the next year, also. To be fair, he left his in the "on" position after it discharged and didn't use it for more than 4 months (long story). I don't know if not turning it off when he was no longer charging it damaged the battery as opposed to turning it off and then not charging it. Anyway, the battery life is something to ask of the Nevro rep, if you haven't already.

Dec 15, 2019 · Anyone used Spinal Cord Stimulation for pudendal nerve entrapment? in Chronic Pain

I have had great success regarding lower back pain from my high-frequency SCS. It's been more than 2 years that I can sit in the morning without pain. It has NOT helped with my neuropathy. I know it's working because when I forget to charge it, my back starts hurting. It's charging this morning as I type this, pain-free.

Dec 14, 2019 · Anyone used Spinal Cord Stimulation for pudendal nerve entrapment? in Chronic Pain

If you go back through the pages you'll find several people using SCS.