scruffy1 (@scruffy1)

@rwinney Rec'd this today: https://www.npr.org/sections/health-shots/2019/09/23/741783834/in-tiny-doses-an-addiction-medication-moonlights-as-a-treatment-for-chronic-pain

@cbrackle Good post! Experience, experience, experience!

@jimhd My SCS rep had quite a few programs available to reprogram mine. One program worked about 99% for my back but not my neuropathy, so the rep stripped out the other 2 programs that didn't work and put in 2 others, unfortunately also to no avail. May I assume you tried that?

@cbrackle I needed an MRI so they read the resistance on each (16) electrode, and they were all within limits for an MRI. The problem is that no one will do one here if you have a stimulator, so I have to go to an imaging center 90 minutes away. The only requirement was that I have the stimulator off during the imaging. Check with your rep about the procedure.

@jimhd Hi all. A friend rec'd his SCS less than 2 yr. ago and has had muscle pain in the area of the SCS ever since. Next month a neurosurgeon is relocating it from below his beltline to above it and the muscle that hurts. It is a different surgeon this time. They are not certain that the location of the SCS is the cause of the pain, just hoping for the best. BE CAREFUL when selecting a surgeon. Ask that surgeon how many he has done and ask to talk to his patients.

@jmweissler More power to you! I'm glad you're getting some relief.

@ursweetpam @jimhd Latest news is that he's no longer getting enough relief from the hemp oil, has an appointment this week with the doc to explore getting the a Nevro unit reinstalled with new leads. His problem was that the impedance for all 8 electrodes on one side had a level exceeding 10,000 so he couldn't get an MRI. Now that he's gotten the MRI and addressed problems it uncovered, he wants a stimulator. I needed an MRI and had to get the levels checked, were all under 1000 but the people here at the SE Georgia Health System will still not do an MRI. We have to go up to an imaging center in Savannah, about an hour north. They gladly do them when they have the impedance levels certified. They merely require that you turn off the unit.

@amomynous 30 years of SI joint pain relieved by chiro who untwists my sacrum. Takes 2-3 minutes! Sent to her by my surgeon. That's about once a month and as an auxiliary to SCS. Almost zero pain even early in the a.m.