Badges (1)

About

State/Province
SC

Country of Residence
United States of America

Health Interests
Autoimmune diseases, Chronic pain, Neurology (brain and nervous system)

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (8)

Aug 7, 2018 · Neuromyelitis optica (NMO) in Autoimmune Diseases

@johnbishop I started getting sick in Nov.2016 .I had pneumonia first and I had to keep getting different antibiotics because nothing wasn't working for me and I kept getting dizzy. One day I got real dizzy and couldn't walk. Then I woke up with a tube down my throat. I couldn't move my legs my hands were swollen and really numb and also my legs and feet were numb. I started plasmapheresis for 5days(doing it every other day). Then I end up getting transferred to MUSC in Charleston, South Carolina were they diagnosed me. My right eye was hurting I stayed dizzy for a while. I did some more plasmapheresis over there also. I started doing better doing rehab learning how to walk all over again. I went to rehab after I left the hospital. Then in April 2017 I had a relapse of me not being able to walk again, went back to the hospital for a short period of time and went to rehab and came back home. I did rehab at home also. I'm taking imuran for my immune system.

Aug 7, 2018 · Looking for info about Devic's Disease / Neuromyelitis Optica (NMO) in Brain & Nervous System

Hello, I have been diagnosed with NMO and I have really bad nerve pain around my abdomen. It has my back in pain and my right side. I have tried several pain meds and nothing is giving me any relief. Does anyone have any suggestions?

Jul 15, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you so much and I just got finished telling my mother about people hurt much more than I do.

Jul 12, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi @ursweetpam I don't have an answer for you as I have bad nerve pain also and looking for advice on what to use or get for it. I just wanted you to know I hope you find something to help you and I am praying for you. Don't get discouraged about your pain. Just keep a positive outlook on it. I know that's easier said than done, but stay positive.

Jul 9, 2018 · Cervicogenic Headache in Autoimmune Diseases

@helloshelly7969 Sorry you are going through that. I hope you get to feeling better soon. I used to stay in my house because of my pain too, I know what you're going through.

Jul 9, 2018 · Nerve Pain in Chronic Pain

You're welcome and thank you!

Jul 9, 2018 · Nerve Pain in Chronic Pain

@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily affects the eye nerves and the spinal cord. It occurs when your body's immune system reacts against its own cells in the central nervous system and mainly in the optic nerves and spinal cord, but sometimes the brain. I am taking a drug called imuran that help to suppress my immune system. I have a spot on my brain and spinal cord which now is slowly decreasing.

Jul 9, 2018 · Nerve Pain in Chronic Pain

Hello, I have been diagnosed with NMO and I have really bad nerve pain around my abdomen. It has my back in pain and my right side. I have tried several pain meds and nothing is giving me any relief. Does anyone have any suggestions?