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1 day ago · Living Donor Process in Transplants

I am so excited for you and for the person/people who will receive a second chance because of your gift. Those of us who have received an organ donation know just how special it is. Love yourself, be good to yourself, what you are doing is setting in motion a domino effect that will impact thousands of people. Each living donor not only saves the person they donate to but they also allow EVERY person on the waiting list to move up a spot in line. God bless you! You are amazing and selfless. Thank you for letting us share in the joy of your journey.

4 days ago · Lodging transplant patients in Transplants

I agree with @rosemarya on the benefits of staying at the Gift of Life Transplant House. Even if you only spend a few weeks there it will provide an environment that is perfect for recovery. The Gift of Life facilities are cleaned with transplant patients in mind so they are far safer than hotels and apartments. Shuttles are available for transport to the hospital, stores, etc. even bloodwork can sometimes be arranged so you don't have to go to the lab. It is also a great place to meet other people who are going through the same things you are so it has a built in support system. Laundry and kitchen facilities are provided right on site so you have pretty much everything you need while you recover. Best of luck with your upcoming visit.

Wed, May 8 2:32pm · Living Donor Process in Transplants

I have nothing but wonderful things to say about my living donor transplant in Rochester. Rochester is so beautiful in the summer.
I will keep you in my prayers. Let the count down begin!!!!

Thu, Apr 11 8:33pm · Living Donor Process in Transplants

Yay you! Living donors are our favorite people around here! Great to meet you. My living donor was VERY proactive and called the donor line or the nurse coordinator whenever she has questions. She went from questionnaire to being my donor in 6 weeks (she was in perfect athletic condition which made a big difference). One possibility of why you haven't gotten the call could be that there is another donor ahead of you and they can't tell you. Call in, see if you can get your questions answered. Good programs expect donors to be motivated so the hospital staff will understand. Also just random advice, stay hydrated, not only is a lot of water (2 liters a day) good for you but it will also help your testing go more smoothly. Blessings to you both. Sounds like you are an amazing person to be helping your sister by donating the gift of life. Keep us posted.

Tue, Apr 9 4:58pm · Sunscreen in Podcasts

Thanks @rosemarya for sharing this, great info!
Based on the interview, I will need to dramatically increase the amount on sunscreen I use. I am so glad to know that the sun protective factor in UPF clothing goes on forever, I was worried it wore off.

Fri, Mar 29 7:35pm · Belatacept in Transplants

I'm sorry to hear how difficult this has been for you. I know a lot of times they keep med levels super high initially untill your new organ settles in but what you are describing sounds rough. I would call your team on this one and see what they say. I've actually been curious about the extended release drugs myself but you've given me pause.
Keep us posted.

Mon, Feb 25 11:24pm · Kidney transplant: Thinking of becoming a donor in Transplants

You're not crazy, you're AMAZING!!!!
My life was forever transformed after I received a kidney from an acquaintance at work and she is now my "kidney sister".
Living donors are incredible people and through their selfless giving health is restored to someone who is suffering.
God Bless you for even considering donation.

Tue, Feb 19 3:21pm · 3rd stage kidney disease and diet in Kidney & Bladder

Labs in 2 weeks is great! Tantrum on the floor, not so great!
You've been through so much it is ok to be upset. I really hope your diet and daily fluid goals help, certainly can't hurt.
I know you and I have very different circumstances but I have seen very scary drops in my labs bounce back. I am praying the steps you are taking pay off. Please keep us posted. We are all cheering you on!