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1 hour ago · Living Donor Kidney surgery next Tuesday: Any advice? in Transplants

@earlenes
You are AWESOME! I know firsthand what a big deal this is because my life was forever transformed by receiving a living kidney donation! What you are about to do will profoundly change the lives of people involved spiritually, emotionally and of course physically. God Bless you for be such an incredible and selfless person. I am alive, happy and healthy today because my donor stepped up. I am so grateful and I am sure everyone in your kidney chain will be as well.

My advice to you is:

#1. Be very careful what you in the days leading up to surgery and the days following. The surgery meds can cause severe constipation and an ounce of prevention is worth a pound of cure on this one. Don't go crazy but softer, high fiber, easy to digest foods are best as you prepare and recover from surgery. You are a hero and deserve to recover pain free.

#2. Tell EVERYONE what you are doing and WHY you did it. You will forever be an ambassador for the greatest gift anyone can give. You will absolutely inspire others by sharing your journey.

#3. My donor said the second day following surgery was her toughest day and after that she got better each day. Expect to feel a bit worse for a few days and then better and better over the following weeks.

Finally… THANK YOU! As a recipient I can only tell you what you are doing is nothing short of a miracle for the patients and families involved. God Bless you and please keep us all posted.

Jolinda

Nov 27, 2019 · Your gratitude changes because of organ failure... in Transplants

Have you noticed that your gratitude has changed both pre and post transplant? I watched a fellow transplant recipient walk his daughter down the aisle at her wedding last weekend and I was overcome by the beauty of the moment. I struggled a second time not to cry when the bride made a special toast to the living donor who saved her Dad’s life.

Both the process of becoming very sick and knowing how blessed I am to have gotten a transplant have made me more grateful. I find myself stopping more often and feeling more deeply the little moments in life that I have gotten the pleasure to witness. I don’t think I was this emotional before being sick.

Is it just me? Have you had an experience where you feel more emotional because of this crazy journey? Are we all just more aware and grateful than we were before or is it just the meds talking?

Oct 10, 2019 · Stage 5 renal failure: Docs says options are death or dialysis in Kidney & Bladder

@larry1943 I of think of GFR as a measurement of how well your kidneys filter poison out of your blood, so if you dilute your blood (either by adding blood products or being hydrated) the test seems like you have less poison when really you just diluted your blood. I wouldn't focus on the 3% fluctuation, in the big picture it is not a significant change.

What I really care about here is YOU! Even after just a few posts it is clear that you have been through a lot and have fought your way through many close calls. I want you to keep fighting!!! Prove your doctor wrong. Get the fistula, fight through the adjustments that dialysis brings, continue to inspire others. You can do this. As someone who's been in end-stage renal failure I can tell you first hand our brains get foggy, our spirits get weak but that isn't who we really are it is just the toxins in our blood talking. Fight Larry! You can do this and our whole community will be right here cheering you on.

Oct 9, 2019 · Stage 5 renal failure: Docs says options are death or dialysis in Kidney & Bladder

@larry1943
Hi Larry,

Clearly you are a fighter if you've battled diabetes, a bout with dialysis and gangrene!!! You sound like one tough cookie. 🙂

Typically ports need to mature for 6 months before they can be used, maybe your Doctor is thinking ahead? I'd try to think of the port as an insurance policy, hopefully you won't need it anytime soon but if you do you'll be glad you have it.

Wishing you all of the best,
@jolinda

Oct 4, 2019 · Dizzy still after my liver transplant in Transplants

Just a quick piece of advice, if you are feeling dizzy sit down or get your head low. I am very tall so I've learned over the year's if I feel dizzy or off balance it is best to just sit down, even if it's on the floor. If you do end up passing out it will prevent you from getting seriously injured.

Oct 4, 2019 · Dizzy still after my liver transplant in Transplants

@livertrex
Congrats on the transplant!!! How great is life when you can finally set down the burden of waiting for a solid organ transplant! Yay you! I had a kidney transplant but also felt very dizzy post transplant. I guess my body needed time to adjust to being healthy…high class problem, right? It would be worth a call to your team or a maybe portal message. They will absolutely ask you standard questions like, what is you blood pressure running, are you hydrated, are you taking your meds on time, is it all of the time or when going from sitting to standing, etc. The better prepared you are with accurate answers the better the can hone in on your problem. I was able to get back on track with changes in diet and by giving my body time to adjust. Good luck and keep us posted.

Oct 1, 2019 · Waiting for the Call: What needs to get done at home before you go? in Transplants

@auntval
I will keep in in my prayers. Living donation is such an amazing gift. I am so in awe of donors and I truly think they represent the best of humanity. I just saw my donor last week and she reminded me that she walk a mile a week after surgery…overachiever! 🙂 All my best to you.

Sep 20, 2019 · Post kidney transplant issues in Transplants

@contentandwell
Thanks for sharing this it is such important information. I used to always get coffee when I would fly because I was cold and I thought it was hot so therefore safe until someone said it's so unsafe the flight crews don't drink it. Yuck!!! I have also heard that the airport kiosks are the germiest thing you come in contact with traveling followed by tray-tables and arm rests. So important to stay safe!