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Posts (5)

Jul 24, 2018 · Breaking it Down: Post Intensive Care Syndrome and Recovery - The Body in Post Intensive Care Syndrome (PICS)

I was diagnosed with AL Amyloidosis in December 2016 and in the last 9 months I have started to have tremors in the hands,arms and legs that progresses into uncontrolled falling. I have fallen down aver 50 times.i have tried five different chemotherapy drugs but none of them have put the Amyloidosis in remission. In addition to falling down my kidney functions are worse than they were a year ago.
My creatinine has increased from 1.7 to 3.0. Has anyone had a similar experience?

Jul 9, 2018 · Current diagnosis is Amyloidosis and multiple myeloma in Blood Cancers & Disorders

I am having tremors in the hands, arms and legs which leads to falling down. I was falling before i started Darzalex. No side effects that I can identify after 8 weeks of taking Darzalex. Does anyone else have tremors and falling issues with Amyloidosis?

Jul 4, 2018 · Current diagnosis is Amyloidosis and multiple myeloma in Blood Cancers & Disorders

Has anyone diagnosed with type AL Amyloidosis had success after treatment with Darzalex? If so, how many treatments?

Jul 4, 2018 · Keppra in Epilepsy & Seizures

I have been diagnosed by Mayo Clinic as having Amyloidosis. I am now experiencing numerous falls. I just started taking Keppra yesterday to see if there is some relationship with seizures or to see if Keppra will minimize the falls. The falls seem to result from tremors in the hands, arms and legs in that order. Has anyone else had a similar experience and have you had any success with medication?