I was diagnosed with AL Amyloidosis in December 2016 and in the last 9 months I have started to have tremors in the hands,arms and legs that progresses into uncontrolled falling. I have fallen down aver 50 times.i have tried five different chemotherapy drugs but none of them have put the Amyloidosis in remission. In addition to falling down my kidney functions are worse than they were a year ago.
My creatinine has increased from 1.7 to 3.0. Has anyone had a similar experience?