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14 hours ago · Negative sputum results without treatment in MAC & Bronchiectasis

@sayaboleh Thanks for your response. Keep us updated on your progress. Cheers!

14 hours ago · Negative sputum results without treatment in MAC & Bronchiectasis

@sayaboleh @annya I have the afflo vest. I wear it while nebulizing my 7% saline and I stop every 10 inhalations and do my postural drainage. I’m currently stable now & able to exercise for 2 months – thank you God.

I do get just a little bit of yellow mucus out of my lungs each day, and I think it helps a little bit with my sinuses as well. ( I have m. abscess, MRSA, and Acintobacter Baumanii colonized in my sinuses.) I use the Navage for my sinuses and it seems to have really made a difference.

1 day ago · Negative sputum results without treatment in MAC & Bronchiectasis

@sayaboleh Hi Mary, I enjoy and appreciate your insightful comments, thank you. You were at the conference, correct? Can you tell me was there any discussion of soft tissue/skin NTM infections?

Tue, May 14 8:55am · Negative sputum results without treatment in MAC & Bronchiectasis

@windwalker The dermatologist biopsied a spot on my elbow yesterday. It will be a couple of weeks before we get results. Her guesses were granuloma annulare, or maybe sarcoidosis, rather than erthyma nodosa.

Mon, May 13 9:04am · Negative sputum results without treatment in MAC & Bronchiectasis

@windwalker Hi Teri, do you know of anyone who has experienced erythema nodosa (red, raised skin nodules) usually along shins, arms, associated with MAC, m. Abscessus?

Thu, May 2 9:02am · MRSA in MAC & Bronchiectasis

@windwalker Hi Teri, I’ve cultured MAC, MAI, and now Mucor in my lungs, and MRSA in my sinuses, along with m. Abscessus and Acintobacter Baumanii. Each time I’ve asked if I’m contagious and the Pulmo, ID doc, and ENT all say I would only be infectious to those with a compromised immune system.

Tue, Apr 2 3:19pm · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

@noahs My ID doc checks my immune system periodically,
and I’m always have a couple things outside normal range. How exactly did they diagnose your rare autoimmune disorder?

Tue, Apr 2 9:18am · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

@merpreb So a quick research glance tells me Ventolin is albuterol. In other research, I think I read albuterol, or other Rx bronchodilators like Advair, (that I used for years) can actually lead to or worsen chest infections if used for long periods of time?