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Posts (82)

Wed, Sep 11 9:23pm · Extreme fatigue with MAC in MAC & Bronchiectasis

@migizii Sleep is the ball game for me! Especially when trying to work or watch grandkids!

Tue, Sep 3 8:51pm · Anyone used Tea Tree Oil in a nasal rinse for chronic sinusitis? in MAC & Bronchiectasis

Hello @jenniferhunter @ethanmcconkey @fdixon63 Thank you for the tag re: sinus issues. I culture m. Abscessus (fast grower), MRSA, and Acintobacter Baumanii in my sinuses regularly. My ENT, ID doctor & Pulmonologist at Stanford are all thrilled with how well I’m doing since beginning using the Navage Sinus rinse device. I add my Gentamicin antibiotic and Budesonide to it, as inhalants. (This spares my GI tract a little, since I don’t have to take them orally.) I was scheduled for a 3rd & final sinus surgery last January, and we were able to postpone that! God has been merciful to me so far, and I stand in humble gratitude. I hope this information will help others!

Fri, Aug 9 8:33am · Helpful Devices for MAC in MAC & Bronchiectasis

@flib Hi, I had the Hill-Rom vest first, now the Afflo, I prefer it because it’s battery powered so I can walk around with it.

Wed, Aug 7 8:56am · IVIG infusion treatments for Bronciectasis in MAC & Bronchiectasis

@kpost2 Hi there, I think you’re the first Nebraskan I have seen on mayoconnect. I live in California, but grew up in Beatrice & Millard. Where are you located? Do you go to NJH for care? Sorry you are in this elite “club”!

Tue, Jun 25 12:04pm · Medication change from clarithromycin to azithromaycin in MAC & Bronchiectasis

I’m so sorry. Your frustration is completely justified!

Tue, Jun 18 8:31pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@migizii Hello, yes, my Pulmo, who sees hundreds of Bronch patients tells me every person’s situation is different. Glad you are doing the work and enjoying results.

Thu, Jun 6 2:10pm · Diagnosed with MAC but not being treated in MAC & Bronchiectasis

I have both MAC and m. Abscessus. We are waiting and monitoring based on lack of symptoms and CT scans.