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Tue, Mar 12 4:44pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@ling123 I wholeheartedly agree with you, sugar is our enemy, and nutrient rich foods are key!

Sat, Feb 23 7:14pm · Aspergillus with MAC in MAC & Bronchiectasis

@windwalker we appreciate you!

Sat, Feb 23 11:36am · Aspergillus with MAC in MAC & Bronchiectasis

@teriwalker The Hypoxia is disconcerting, isn’t it?

Sat, Feb 23 8:34am · Aspergillus with MAC in MAC & Bronchiectasis

@windwalker if you care to share, what is your lung function? Are you on O2?

Thu, Feb 21 8:09am · Aspergillus with MAC in MAC & Bronchiectasis

@franthony yes I have had aspergillus show up along with my MAC and abscessus. dr said it was a small amount so we are just Continuing to surveill sputum samples. Th anks for your post, please let us kno your progress. Good luck to you!

Wed, Feb 20 10:16am · Diagnosed with MAC but not being treated in MAC & Bronchiectasis

@suzyqueue, @windwalker Suzy, I love your determination! We can do this!

Easy for me to say, I’m not on the Big 3 or Amikacin yet – I have colonized MAC in my lungs and abscessus in my sinuses…if I get 1 more sputum sample back positive for abscessus in my lungs & am symptomatic, then I’ll probably have to start the “Big” treatment. 🙏

I see advertisements for the “So Clean” CPAP Sterilizing device, and I’m curious if we could throw our nebulizer equipment & sinus cleaning equipment in something like that to save some time as well as get a better level of sterilization?

Wed, Feb 20 9:40am · Diagnosed with MAC but not being treated in MAC & Bronchiectasis

@suzyqueue I am so impressed with your 4am commitment! Good for you. If we go to the gym at 4;45am, and then I do my therapy, I often want to nap before work. I don’t think the doctors -or anyone who doesn’t have lung disease – can fully appreciate how exhausting 40 minutes of: nebulizer/postural drainage/forced coughing can be…this disease requires self discipline, (and for me, God’s help and a sense of humor) to be sure!