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Nov 29, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert thanks to you both for your responses. God Bless and keep you!

Nov 29, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@boomerexpert @heathert , Hi there, I am curious when you say “asymptomatic”. My dr and I will need to decide soon whether to start Big 3 or not. I’ve had MAC avium in lungs diagnosed in 2016, and now m. Abscessus has moved into my lungs (already in sinuses.) currently I’m asymptomatic, except for flu-like body aches and fatigue. Historically, I’ll have aches, quickly followed by fever, exacerbation. But I’m “stalled” at extreme aches for the past 7 days! Keep wondering if abscessus has disseminated to my blood or digestive system, or what in the world this could be? Taking Tylenol and trying to fit through it and not miss work, but it’s tough. I have GERD and DDD, but no other co-morbidities. I’m in touch with my dr. at Stanford and will see ID doctor in January, but just wondering are these tremendous aches part of the m. Abscessus? Thanks for any thoughts

Nov 18, 2018 · Chest pain, thoracic pain, intermittent in MAC & Bronchiectasis

@egayle187 Thank you I will look into fundiplication and the books.

Nov 18, 2018 · Chest pain, thoracic pain, intermittent in MAC & Bronchiectasis

@margiebanks Cold sensation – that is a great description. I described it that way to my doctor at Stanford and she said she had not heard that before. I wonder sometimes!

Nov 18, 2018 · Chest pain, thoracic pain, intermittent in MAC & Bronchiectasis

I do really wish we could do a bronchoscopy at this point.

Nov 17, 2018 · Chest pain, thoracic pain, intermittent in MAC & Bronchiectasis

@egayle187 hi there, thank you for the tips. Just wish we knew if the pains & the burning/need to swallow frequently are a warning sign lungs are being damaged further?

Nov 17, 2018 · Chest pain, thoracic pain, intermittent in MAC & Bronchiectasis

@amn17 thank you for your post. I often feel the sharp pains in the exact same place over and over, and it happens to be where the CT shows the worst damage: base of my left lobe. Just trying to determine if it’s a symptom to which I should pay attention. Anyone else’s have kind of a acid reflux feeling and constant need to clear throat of thin bits of phlegm? I have GERD, but it feels like it’s in my trachea?