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Jun 19, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@lisajensen hi! I have been on allergy shots for years and they seem to help with sinus infections. I only tested positive for a dust allergy. But I am very interested in trying the drops! I will ask him about this. I just recently (as of a couple of weeks ago) have gone gluten free and dairy free. I have started on a plant based/gluten free diet in hopes of eliminating at least some of my symptoms. Fingers crossed!

Jun 19, 2018 · Treatment for chronic epstein barr in Infectious Diseases

Thank you! I definitely will. I agree, the steroid drops didn’t work and cause side effects from long term use. I also had plugs put in my tear ducts and I think that helped a little.

Jun 19, 2018 · Treatment for chronic epstein barr in Infectious Diseases

Also forgot to add I have had a rash on my legs for over two years (mainly on my shins and inner thigh). I have been told it is eczema/hives.

Jun 19, 2018 · Treatment for chronic epstein barr in Infectious Diseases

I forgot to add I’m hypsersensitive to heat and cold temperatures.

Jun 19, 2018 · Treatment for chronic epstein barr in Infectious Diseases

Hi! I have dry/red/itchy eyes. I believe it is related to EBV somehow. After seeing 4 specialists I have learned there is not many options to treat these kinds of issues, but that it is a sign of inflammation.

Jun 19, 2018 · Treatment for chronic epstein barr in Infectious Diseases

Hi, all! I have been on a similar journey to you all for the last 8 or so years. I caught mono in high school, and not long after I went to college I became ill with the first of my chronic symptoms. It first started with swollen lymph nodes, migraines/sinus headaches, congestion/runny nose/sputum, constant low grade fever, raynauds syndrome, chronic fatigue then eventually progressed to sinusitis. I felt like my body was in constant over drive 24 hours a day. I tried every antibiotic and steroid I could and found no relief. I was also constantly getting sick with other visurses (strep, stomach virus, flu, pneumonia, etc) After seeing my immunologist/allergist he ran tests that showed my ebv levels were high, and explained to me that also discovered my T cells do not work properly. I was also told my I was also not allergic to anything but dust. He also ran ANA tests and they all came back negative. I then went on to see an infectious disease doctor. All of my tests came back fine. Next stop was an ENT. They performed surgery on my sinuses and that helped a bit, but later the infections came back. These symptoms have remained for the most part, but there have been new chronic symptoms that have been adding on top of the existing over the past few years. I also started to struggle with IBS, extreme migraines through out the week, and dry eyes. The dry eyes have gotten so bad since last year that my eye pain is constant. After seeing several eye specialists I have learned that the symptoms of dry eyes are the response to inflammation. I also now have 1 droopy eyelid. My neck (lymph node) pain has increased, low back pain, joint pain, constant dehydration, ulcers in my mouth, and low brain function/foggy thinking. I’m currently 27 and just retested for ebv. And yet again, it’s incredibly high. I’m starting to read the medical medium book and take it seriously because I feel like the virus is taking over my entire body. My next step is to find a naturopath that knows something of CAEBV as well. Will keep you all posted on the book and scouting out a naturopath.