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Posts (66)

2 days ago · Caregiver Burnout Warning in Caregivers: Dementia

Sorry for your dilemma. Sounds as if you did all you could. Too bad for so many crazy dead ends. Be-at peace if you can. Pray for him to be comfortable. My hibby is in a nursing home with Primary Progressive Aphasia; Frontolobal dimentia; Alzheimer's. He has not been able to find his words and doesn't speak.. no longer frustrated by It, thank goodness. Yes and no answers. He smiles…seems to know us…not minding being unable to see us in inside. I miss him. Im very lonely. We visit through window at the facility or on video. Our kids all married with work..family are helpful tho. Hang in there. Sorry for your experience with the VA.

Nov 30, 2019 · Loss and Grief: How are you doing? in Loss & Grief

Hi. Sorry for your loss.. Will keep you in my prayers. It seems as if
you will never be the same. Happened to me when our mom passed at the age
of 53 and dad before that was barely 44. I am the oldest of 7 subs. Had a
husband and son at the time. Not only did I grieve the loss of a parent I
thought I needed to become responsible for everyone. It took me on a road
of depression and anxiety on and off for years. I am now 78 and we still
feel the void. Now I am in grief for my husband who has PPA non stroke
related and AD. Had to admit to nursing home in Jan. Its,a change and
lonesome life, even with a loving family. 4 children 8 grands and 2
GREATgrands. 1st Thanksgiving celebrated without Dad, Grandpa….now
hoping we can arrange for wheel chair van for Christmas.

Sep 26, 2019 · Meet fellow Caregivers - Introduce yourself in Caregivers

@chesneydell1965 ..Heartfelt sadness in what you are experiencing. I no longer care for my husband@home..He is in a Nursing home…his frontolobal dementia seems to manifest itself with him being totally indifferent to me when I visit. It hurts. I get it. It is the disease. I'm grieving the loss of our relationship as partners for 59 yrs, my love my all…every day is a challenge in this journey of Alzheimer's. Praying for you. Glad you came aboard.

Sep 21, 2019 · Meet fellow Caregivers - Introduce yourself in Caregivers

Debra since Jan this year. He is settling in well. Initially was constantly trying to leave and acting out when I left. Seems to be adjusting but does not interact with me. I kiss and hug him but he is platonic which is part of his frontolobal dementia….? Not sure of the spelling….indifference is part of that diagnosis. The worst is his inability to communicate. Cannot find his words. My heart is sad….although he does know who we are. Lights up when our kids and grandkids visit.

Sep 20, 2019 · Meet fellow Caregivers - Introduce yourself in Caregivers

@debbraw Yes. DO have great support group. Once a month. Counselling therapy has been great. I am experiencing anxiety and depression. PRAYER and my church are another support. I'll pray for all of you.

Sep 19, 2019 · Meet fellow Caregivers - Introduce yourself in Caregivers

@debraw706 I also attended in Mi. Very informative. Best part was that everyone shared their experiences. And the stages explained a lot. My husband is in a facility…hardest thing ever done. Still have doubts he should be there. Our daughters were worried about my health having him home. Alzheimer and Aphasia are his diag. I'm all alone. Going through counseling…seems helpful. Highly recommend the workshop.

Sep 2, 2019 · Meet fellow Caregivers - Introduce yourself in Caregivers

Thank you for sharing. What involved his initial fall? Did he trip? Dizziness? Was it 1st time? I really hope he agres soon to go to the doctor. Perhaps other family members could help talk with him and encourage him before he further compromises his health. Good luck.

Sep 2, 2019 · Meet fellow Caregivers - Introduce yourself in Caregivers

Oh no. You need to reach out. To someone. Hospice for one. They helped me when my husband started falling. Asking for help is the 1st good step to taking care…of you. I would love to hear your story. I am sure we all can listen and share our experiences and help to get through this journey. We are here for you.