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About

First Name
Bev

Country of Residence
Canada

Health Interests
Blood disorders, Ear, nose and throat disorders, Lung and airway disorders

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Posts (8)

Fri, Jul 12 9:23am · ENT Issues: I don’t know what to do. in Ear, Nose & Throat (ENT)

Maybe you could see an otolaryngologist to check for nasal polyps? Also could try salt water rinse of nasal passages to clear up any problem there. Good luck but I’m sure all will be well soon.

Sat, Jun 29 8:58pm · Mast Cell Activation in Blood Cancers & Disorders

I have Asthma, Allergies and Nasal Polyps. Allergist I see now told me people with all of these have something called Sampters Triad. Allergy to Salicylates. He advised to try desensitization and started me on very low dose aspirin, under their supervision. Gradual increase to 325 mg daily. I have noticed a great improvement in all asthma,allergy and nasal problems, without changing food I eat. Don’t know if this would apply to your problem but maybe worth checking into.

Tue, Jun 11 1:56pm · 6 sinus surgeries and nothing better in Ear, Nose & Throat (ENT)

One other thing to mention regarding allergies, asthma, sinus nasal polyps. Allergist in past 6 years has helped with this quite a bit. He felt I was too old to start allergy shots again (have had in past but no great improvements). So he knew of something called Samter’s eTriad, which is when someone has all three things mentioned above. Indications are that the person may be allergic to salicylates (which are found naturally in many foods, fruits, vegetables etc). So he started me on very low dose aspirin and has built up to a 325 aspirin per day. This is a desensitization process to improve the Salicylate allergy. I have to say that this has helped a lot, not a complete cure all, as of course you may be allergic to other things too. It has seemed to keep things in check. Hope this might help someone else too. I take the coated aspirin to try to avoid other problems.

Mon, Jun 10 11:50pm · 6 sinus surgeries and nothing better in Ear, Nose & Throat (ENT)

See online https//drsummitshah.com/the role of platelets in allergic reactions. Studies such as this back up my feeling, that high platelets may result (at least in part) from inflammation of sinuses, polyps, asthma and allergies. I have had 2 sinus surgeries in past 12 years to remove polyps. I was warned it is not a cure but does help for awhile. The Hematologist does not think it has any connection but I continue to research and there are several articles that point to it. I am not happy taking Hydroxyurea for a year, as I can see it starting to affect my fingernails, weak leg muscles, makes asthma worse and fatigue etc. I was a reasonably healthy, active 78 year old prior to this. I know the Hematologist is trying to help me by medicating with Hydroxyurea but it seems to be bringing me down in other ways. I continue to live as usual, stay active and eat healthy and have thought about going off Hydroxyurea and take my chances. These are my own thoughts and I put forth the above info, which may or may not help someone else.

Fri, Apr 5 3:39pm · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Yes, I have read this and also things like Shitake Mushrooms. I asked Haematologist and he dismissed that in a huff. For me, I don’t see why foods would not help, since diet seems to affect health in general. If there is a chance foods help to lower platelets..I think that beats taking huge amounts of Hydroxyurea. You bet I eat shitake mushrooms etc.

Fri, Jan 4 1:35pm · Essential Thrombocythemia in Blood Cancers & Disorders

@huronshores
High platelets, no clue until routine blood test. Saw Haematologist, on Hydroxyurea since May/18 and took about 3 months to lower platelets. 78 yrs old, active and reasonably healthy .. Some allergies, well controlled asthma and have had two past surgeries for sinus polyp problem. Polyps are treatable but not curable. Since an infection could affect platelets, I saw a specialist re sinuses. He said I may need another surgery to help with existing polyps but did not seem to think it was cause of high platelets. (However, in doing a bit of reading I have seen some studies that say people with sinus polyps show higher platelets?). Very hard to say what is correct. Also, asked whether diet could lower platelets somewhat. Haematologist said definite no. However, again in doing some reading, there is info that says certain foods can lower platelets. I am not happy to be taking Hydroxyurea, as while it can be used for high platelets, it sounds like it affects pretty well all cells in your body. Certainly have noticed side affects and all seem to match up with the info the drug store provided with the Hydroxyurea. So far the Haematologist has pooh poohed all side affects. I have another appointment coming up soon, so another blood test re platelets. Still thinking and not sure what I am going to do about this but not happy taking Hydroxyurea forever. No one wants to have a possible stroke, thrombosis etc as a result of high platelets .. But at the same time, Hydroxyurea can lead to other problems. Sort of like taking your car to the garage to get get new tires so that you will drive safely but then the wheels fall off! I am speaking only for myself here and not saying you or anyone else should follow my thinking. Part of me is influenced by my age and that makes me wonder if my remaining quality of life is going to be affected too much by the medication. I have a neighbour that told me she has been taking Hydroxyurea for years but I don't know the exact facts involved for her. I have been pretty lucky health wise and have not needed much medical care over the years, as compared to others in my age group. Did have one problem where I exactly listened to a Doctor against my judgment and that turned out to be a disaster. So forever after, I will be questioning and trying to pick up all the information I can on medical issues. Guess I am a doctors nightmare. Don't know if anything here helps but I am just sharing my experience so far.

Jun 16, 2018 · Essential Thrombocythemia in Blood Cancers & Disorders

A bit more tired than usual, running to bathroom (bladder) a lot. Not sure what long term effects may be.

Jun 16, 2018 · Essential Thrombocythemia in Blood Cancers & Disorders

77 year old female, good health, very active. Routine blood test recently turned up high platelets .. Saw Haemotologist, now on Hydroxyurea for 2 months. No cause for high platelets is known. I have chronic sinus problem and have had two surgeries in past for polyp removal. This helps but does not cure, so deal with frequent sinus infections. Have read that an infection can cause high platelets so I am definitely looking into that .. Upcoming appointment with Otolaryngologist that did sinus surgery to check out condition of sinus problem. This was arranged by me with referral from my regular Doctor but not something either she nor the blood specialist would even listen to. This may not turn up anything but I think it is worth checking. Don't want to take Hydroxyurea forever if not necessary.